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Newly diagnosed Metastatic Prostate Cancer

Posted by rxgolfer @rxgolfer, Nov 4 4:37pm

Aloha all,I’m 67 y.o. Had recent biopsy - Grade group 4 in 2 of 12 samples. PET scan showed multiple lymph nodes in left pelvic area that lit up. Last PSA was 22. See MD this Friday to go over PET results.
I’m in Oklahoma. Have researched Mayo Clinic in Phoenix (relative lives near there), friends in California are recommending UCLA, UCSF, or Stanford. Gathering info at this point. Plan on fighting this disease as best I can, not gonna take no or let’s wait and see for an answer. Anyone been seen at Mayo cancer clinic in Phoenix, AZ ?

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rxgolfer | @rxgolfer | 5 days ago

Thanks that’s good info. My Doc does Robotic Surgery and I made sure Surgery was still an option after starting the Orgovyx and Zytiga and he assured me it would be no problem getting it ok’d through my Insurance. Anyways I’ll verify it again next appointment.

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rxgolfer | @rxgolfer | 5 days ago
In reply to @ajpernsteiner "I have considered going back to regular medicare. My agent told me that can be done..." + (show)
@ajpernsteiner

I have considered going back to regular medicare. My agent told me that can be done on the first of any month, you do not need open enrollment. My wife has been to MAYO Phoenix. Incredible place.

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I wouldn’t doubt it, that’s not what they told me when I called Medicare, but then again I couldn’t understand the rep very well and every answer sounded like she was reading from a scripted answer, and she wasn’t really answering my question and giving me a bunch of info I didn’t need. I’ll get off my soapbox now, have a great evening everyone.

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