1. < Autoimmune Diseases

Lichen Sclerosus: Any other women dealing with this disease?

Posted by Kitten92 @kitten92, May 22, 2017

Is anyone out there dealing with this disease? I am currently using a compound ointment that my oncologist prescribed but I'm looking for possible lazer treatments or anything else that might now be available.

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minnesota10 | @minnesota10 | Nov 10, 2024
In reply to @rashida "@minnesota10 - Cotton toilet paper?? Which brands make cotton toilet paper?" + (show)
@rashida

@minnesota10 - Cotton toilet paper?? Which brands make cotton toilet paper?

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Cottonelle is made from cotton.

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1 reply
rashida | @rashida | Nov 11, 2024
In reply to @minnesota10 "Cottonelle is made from cotton." + (show)
@minnesota10

Cottonelle is made from cotton.

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@minnesota10 oh … I didn’t know Cottonelle was actually made of cotton! I thought the advertisements were describing the paper to feel like actual cotton!

I did use Cottonelle some years ago but stopped using it because I found it caused my toilet to block.

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1 reply
minnesota10 | @minnesota10 | Nov 12, 2024
In reply to @rashida "@minnesota10 oh … I didn’t know Cottonelle was actually made of cotton! I thought the advertisements..." + (show)
@rashida

@minnesota10 oh … I didn’t know Cottonelle was actually made of cotton! I thought the advertisements were describing the paper to feel like actual cotton!

I did use Cottonelle some years ago but stopped using it because I found it caused my toilet to block.

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Sorry to hear that.
I know it helped me.

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rose66 | @rose66 | Jan 1 12:57pm

I have heard about laser treatments for LS, does anyone have experience with it

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1 reply
rose66 | @rose66 | Jan 1 1:02pm
In reply to @rose66 "I have heard about laser treatments for LS, does anyone have experience with it" + (show)
@rose66

I have heard about laser treatments for LS, does anyone have experience with it

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Does it work? Is it painful?

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januaryjane | @januaryjane | Mar 15 10:37pm

I've been diagnosed with LS. Mine started early around 20yrs old. But not diagnosed and treated until my 30s. I don't know about laser treatment. But I did read that taking a antihistamine pill at night can help with inflammation. I use clobetasol whenever I need it and now they say you don't have to use it so sparingly. Breathable pants and underwear if you wear it. I hardly wear underwear anymore and go comando at night. I'm also not afraid to wrap an ice pack and use it when flaring.

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newstar | @newstar | 3 days ago
In reply to @kewp "You saw Dr Coyle, who I recently saw an ad! I’m new to L.Sclerosis & wonder..." + (show)
@kewp

You saw Dr Coyle, who I recently saw an ad! I’m new to L.Sclerosis & wonder if I should go there soon or wait out the Clobesterol Oint treatment (twice a day x 2 weeks, then daily x 2 weeks)? The twice daily seems high to me & don’t want to thin the skin in the figure of 8 application (which includes the perineum & anal areas). In 4 weeks, a possible biopsy, if no improvement.
I’d rather have a reliable treatment sooner. I will ask at my 4 week follow-up. So far, a week of twice daily Clobetasol, it did help the itch, but the white skin & rough areas are still present. Most sites I’ve read start with Clobetasol just daily & taper after some improvement. I sure don’t want cancer in that area!

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I was diagnosed in April 2022 with LS, the ointment my Gynocolgist gave me burned so bad and I did research on it and started using Olive oil, the same kind you cook with, it has been amazing, no more itching ulcers etc.

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newstar | @newstar | 3 days ago
In reply to @januaryjane "I've been diagnosed with LS. Mine started early around 20yrs old. But not diagnosed and treated..." + (show)
@januaryjane

I've been diagnosed with LS. Mine started early around 20yrs old. But not diagnosed and treated until my 30s. I don't know about laser treatment. But I did read that taking a antihistamine pill at night can help with inflammation. I use clobetasol whenever I need it and now they say you don't have to use it so sparingly. Breathable pants and underwear if you wear it. I hardly wear underwear anymore and go comando at night. I'm also not afraid to wrap an ice pack and use it when flaring.

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I cant stress enough on Olive oil and how great it has been for me, the ointments burned so I went all natural. My Gynocolgist couldn't believe it, he has started telling other woman to try it.

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fdixon63 | @fdixon63 | 2 days ago
In reply to @newstar "I was diagnosed in April 2022 with LS, the ointment my Gynocolgist gave me burned so..." + (show)
@newstar

I was diagnosed in April 2022 with LS, the ointment my Gynocolgist gave me burned so bad and I did research on it and started using Olive oil, the same kind you cook with, it has been amazing, no more itching ulcers etc.

Jump to this post

I had surgery for labial adhesion the first of January. I had become so occluded that I could barely pass urine. I can pee now but the area feels like I have a hundred paper cuts. The nurse said to use olive oil or coconut oil. I did the olive oil first and applied it using my fingers. That did not seem to work and I wondered if the actual touching was part of the problem. I realize that using only once was not a good indication of if it would help or not. I went to the coconut oil and it was in a solid form and I would put it on a pad and it seemed to help. My question to you is, when applying the olive oil did you use your fingers or put it on a pad?? Looking forward to your response. I don't see the surgeon until the end of May. Thanks.

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