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Newly diagnosed Metastatic Prostate Cancer

Prostate Cancer | Last Active: Nov 10 9:33pm | Replies (22)

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@rxgolfer

Hey you are pretty smart, Just saw my local Urologist/Surgeon at an Urology Specialty Clinic in Tulsa (I researched a little to find him) to go over PET, was impressed with their operation. Some of his colleagues have ties to UCSF in Ca. And he seems to be up to date on things. Started me on Orgovyx and is getting insurance auth for Zuniga. He started the process before my appt which I appreciated. Plan is to evaluate in 2 to 3 months and then decide on Surgery or Radiation he is ok with either. So I feel some relief (my wife is really relieved) to know that I am being treated now and have some time to figure everything out. Will keep option open of having surgery somewhere else. Appreciate all the info.

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Replies to "Hey you are pretty smart, Just saw my local Urologist/Surgeon at an Urology Specialty Clinic in..."

@rxgolfer , you are most welcome. Glad to hear you saw your urologist and discussed things and got things in motion. One big caution I have for you, I am only a layman, but I think that if you want to have surgery, surgeons don't want you to start the Orgovyx and Zytiga before surgery. My feeling is you should run this topic by your urologist. If you want to have radiation instead of surgery then you typically want to start the Orgovyx and Zytiga as soon as possible. Also, to the best of my knowledge, Zytiga is usually accompanied by a prescription for Prednisone. But these topics are for the experts, the doctors, to handle. This is where you need to be your advocate and ask them.

Something else you might find helpful in your journey is attending a Zoom support group held weekly by AnCan.org. There is a meeting at 5 pm CST on Tuesday, Nov. 12, for High Risk / Advanced Prostate Cancer patients. The moderators of this group have a large body of accumulated knowledge about prostate cancer and know many doctors.. Usually the group attendees include a couple of internists and a psychiatrist. If you would like the group's observations and suggestions on your particular situation, and you are willing to share, log in to the meeting about 10 minutes early and let the moderators know you are new to the group. You will then be given priority to share your case toward the beginning of the meeting. I have learned a huge amount for this wonderful group. Check out their website and look for the High Risk prostate cancer group, one of many groups that they have.