Severe Neuropathy in legs and feet and not a diabetic or alcoholic

Posted by jbb12 @jbb12, Sep 3 10:18am

Dealing with this neuropathy pain for over 3 years. Happened one month after I had an emergency appendectomy at the age of 70. Sudden onset of severe pain in legs and feet. Was not gradual pain. Been to 3 neurologists. Nothing has worked. I am not a diabetic and never drank alcohol. Tried different medication such as gabepentin, etc. tried epidurals, acupuncture, cryotherapy, stem cell therapy ($9000 which insurance did not cover). I have appointments with a fitness trainer to do my best to stay in shape, which exercising is getting so difficult. I am not overweight and have always been physically fit. I’ve had nerve tests, scans, etc. run with nothing conclusive. Said some stenosis. Next is doing an ablation on the nerve but don’t know if that will work either. Can anyone advise what to do next?

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@felicelinda

Have any of you heard of Calmare Scrambler Therapy. Check it out on Google. I plan to get my husband to do it. It’s not successful for everyone, but it does have a high success rate.

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Unfortunately, very few places have this equipment and it is usually not paid for by insurance and it is costly.

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Could be IDIOPATHIC N AUTO IMMUNE,remote may be after effect of COVID oi COVID VACCINES.
I am self suffering both legs NEUROPATHY. After getting all test , examinations, consulting
Neurologist n even more, opinion is as above steted.
Tx for symptoms via GABAPENTIN. N PREGEBLIN family drugs .
Physical therapy yes some control. Necessary to prevent muscle weakness, balance n ability to perform ADL.
Also feel some psychology satisfaction.
I have felt while loaded with mental overload symptoms of tingling, burning, irritation etc. become worse.
Also taking supplements
ALOHA LIOPHIC ACID, BIT B 12,1,6,K2, N what not.
Just hanging in there . May be miracle would happen.
Wish everyone one well.

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I am getting on hormone replacement therapy a.s.a. p.

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@felicelinda

Have any of you heard of Calmare Scrambler Therapy. Check it out on Google. I plan to get my husband to do it. It’s not successful for everyone, but it does have a high success rate.

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Thank you I will research it.

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@jbb12

So many suggestions from all the doctors. One said the possibility of a spinal device which is scary to me. The Pain mgmt doctor suggested the ablation.

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I just had an ablation on my right leg and it seemed to help. using compression knee high socks is very helpful as well

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@burke1707

Numb feet has now moved up to my ankle! Really scared. What can I do?

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Got to the best neurologist in your area and start there. I've been going to Barrows in PHX which is one of the best in the country and they ran a bunch of test to see if I was deficient or over efficient in anything and they found nothing going on that would exacerbate my condition. My condition started in my right calf and then started getting cramps in my ankle in the middle of the night and my toes started to move independently like antennas on a bug lol. since then both calves and feet are numb which I consider a blessing as the painful PN is damn near the worst. I know a guy that has to take morphine pills and when he gets 5 days from his re-order date he gets anxiety attacks until he gets his meds. Have you ever had back issues?

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@daveb68

Got to the best neurologist in your area and start there. I've been going to Barrows in PHX which is one of the best in the country and they ran a bunch of test to see if I was deficient or over efficient in anything and they found nothing going on that would exacerbate my condition. My condition started in my right calf and then started getting cramps in my ankle in the middle of the night and my toes started to move independently like antennas on a bug lol. since then both calves and feet are numb which I consider a blessing as the painful PN is damn near the worst. I know a guy that has to take morphine pills and when he gets 5 days from his re-order date he gets anxiety attacks until he gets his meds. Have you ever had back issues?

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They looked at my back (X-rays, etc.) but they didn’t see anything conclusive that would be causing the severe pain. I even went to a spine doctor in addition to several neurologist. I don’t think I am going to have the next procedure the pain management doctor recommended since the ablation did not work. He said they would do basically a steroid injection at a different angle. None of these injections have worked so I don’t think I am going through them anymore so basically I don’t know what to do next except go back to the neurologist and say, “now what?”

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My husband has severe neuropathy in both legs. Both his sister and mother died bedridden with same. Restless leg syndrome has been ruled out. Aside from analgesics, nothing has worked. Any thoughts

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@26sabrina

Ask your doctor to check your B6 level. If it is high, that might be the cause of your neuropathy. I just found this with a new neurologist after 8 years of multiple tests and severe pain. After stopping all B6, my pain is almost gone.

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If you have tried most conventional/allopathic treatments, discuss, with your doctor, if working with a licensed naturopath could be helpful. Naturopaths, chiropractors & acupuncturists are among the unsung healers today. It's called integrative medicine. Many allopathic physicians welcome different avenues of therapy. Before changing medicines, taking any different supplements or adding anything new to your daily routine, ALWAYS consult your doctor first. Best of luck to you.

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After living with severe neuropathy for 7 years, and having seen a wide variety of specialists there was one significant blood test that had not been done. I finally found a Neurologist who was determined to help me find out why I had the nerve pain as well as a lot of other symptoms, such as chronic fatigue, wide spread pain, general feeling unwell. The best I could describe was like getting the flu, without ever getting sick. It turned out my B12 was extremely deficient. I was diagnosed with Pernicious Anemia and it was later determined caused by autoimmune problems. I am unable to absorb B12 from food or oral vitamin supplements and now take regular B12 injections. It has taken 3 years to get my B12 numbers to a level the doctors are pleased with. Unfortunately long term B12 deficiency and pernicious anemia can cause permanent nerve damage. I would advise anyone like yourself suffering from neuropathic pain in legs and feet of unknown origin to ask you doctor(s) about B12 testing.

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