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Want to talk about Multiple Myeloma: Anyone else?

Blood Cancers & Disorders | Last Active: 4 days ago | Replies (414)
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@itlooksunny

Thanks for responding! The issue of eating & drinking is not because he doesn’t want to but because he can’t! He gets very uncomfortable if he eats too much! Working on more frequent smaller meals.
Newest problem, went for shots & pills on Friday and was turned away! Labs were low! No one called to tell us not to come or explained, until we understood, what was going on!!
Me, how am I doing? Struggling with having to take care of everything alone! Trying to stay positive and continue to do what makes me happy! Appointments interfere with my excercise class schedule and finding time for walks since it is now dark at 5:30!

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Ginger, Volunteer Mentor | @gingerw | 4 days ago

@itlooksunny I typed out a response that is lost in the techy world somewhere! Dang it!

I also need to eat smaller meals. A small breakfast, a few hearty snacks during the day, a small dinner. Never know when I might have a diarrhea concerns, so there is loperamide hydrochloride in my medicine cabinet. The infusion center also recommends ginger or peppermint tea, or ginger chews.

Ask what tests showed too low. How does this delayed treatment impact his treatment plan? Does his Dr know about it, and have thoughts? In my center, we do the labs right before treatment and there is a lab onsite to handle everything.

Ask about a social worker you can see. They will also help family members, and may be able to offer you support group resources. No need to go through this alone! Yes, don't forget about taking care of yourself too, as you also transition to be a supportive family member and caregiver.
Ginger

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