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DiscussionAnyone diagnosed with Eagles Syndrome: Where and what treatment?
Ear, Nose & Throat (ENT) | Last Active: 3 days ago | Replies (18)Comment receiving replies
Replies to "For the past 4 years, I’ve been really struggling. I’ve gone through so many doctors, yet..."
I see this post is from last year so maybe you have found relief by now. It took 20 plus years and 8 doctors before I received a diagnosis. The doctor did a styloidectomy through the throat rather that from the neck. He wasn't able to get all of the excess, but it brought some relief. I also find that I have to take an ibuprofen whenever I use my arm a lot because any swelling in the neck muscles will cause the styloid to press against nerves and make me dizzy and sick. I have also found there are only a few doctors that truly specialize in Eagles Syndrome in the U.S. I would consider doing some on-line research to find them and maybe see if they will do a zoom appointment. There are ones in Illinois, California, and Florida that have videos on-line. There is no excuse for you to have to suffer like that. Hope you find some help.