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DiscussionChanging GI dr's at Mayo Clinic
Digestive Health | Last Active: Dec 7 3:43am | Replies (19)Comment receiving replies
Replies to "I was wondering if anyone has ever been helped by an actual health advocate? I was..."
Hi there @melindanorman. I'm sorry you've had poor experiences and are frustrated. It must feel exhausting traveling to different teaching hospitals and feeling like you're coming up empty. I very much have empathy having gone through my own stuff.
I have a question for you... from all of your experiences and travels, what health conditions have been ruled out? It's helpful to narrow down what you don't have while chipping away at the process of finding out what you may have.
Have you been able to research your symptoms? If so, what are your feelings about your body and what you're going through , are you searching for any specific "new things" or "different treatments" (as you mention) from doctors that you think would be helpful in symptom management?
Hi @melindanorman, I'm sorry to hear that since posting your update in February https://connect.mayoclinic.org/comment/1009374/, you remain on the quest for answers. This must be exhausting and frustrating. What fortitude you have to travel and seek care at a teaching hospital, including submitting an appointment request at Mayo Clinic in Minnesota.
In your original post, you talk about having unmitigated pain:
- Stomach pain undiagnosed for 3.5 months https://connect.mayoclinic.org/discussion/stomach-pain-undiagnosed-for-3-5-months/
I'm wondering if you have considered a pain rehab option and explored central sensitization syndrome. @rwinney and other graduates of the Mayo Clinic Pain Rehabilitation Center explain here:
- Central sensitization syndrome and treatment?
https://connect.mayoclinic.org/discussion/central-sensitization-syndrome-and-treatment/
See all CSS-related discussions: https://connect.mayoclinic.org/search/discussions/?search=central%20sensitization%20
I hope this might open another avenue of possibility for you.