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@loribmt

Hi Steve, @schindsm, Welcome to Connect I’m sorry to hear about your mom’s diagnosis with MDS but you’ve come to the right place to be able to chat with others who have this blood disorder. We have quite an active support group for MDS with many treads…we tend to stray a lot. 😉

So here is a current conversation that might be a better fit. You’ll meet members @momz @dabls6 @kathy115 @lorieafoote @smetzing @jrwilli1 @nbadry @rrivory @honeymae and many others who have MDS or are caregivers.

Living with MDS https://connect.mayoclinic.org/discussion/living-with-mds/

You mentioned your mom was on a break from treatment for 5-6 months. Did her red blood count go up during that interim? Has her lab tests shown blood cells called blasts?

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Replies to "Hi Steve, @schindsm, Welcome to Connect I’m sorry to hear about your mom’s diagnosis with MDS..."

Her red blood counts continue to drop, until she gets a transfusion. BlaST number has been low, at 4% on last BMB.