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DiscussionHas anyone had NETs metastasized to heart?
Neuroendocrine Tumors (NETs) | Last Active: Aug 11, 2023 | Replies (17)Comment receiving replies
Replies to "Anyone with a NET in right hilar that metastasized to heart?"
The treatment is Capox. Just finished first round. Had a routine (but delayed) CT scan and the tumor was found in the right hilar but has since metastasized to the heart area. Unable to get biopsy due to location but had 2 blood clots in each leg that had to be surgically removed and they were able to get biopsy from it due to cancer cells in the clot.
Hello @glbrent and welcome to the NETs support group on Mayo Connect. I see that you have metastasis to the heart. What type of treatment is being planned?
We have one discussion group with members who discuss this topic. Here is the link,
https://connect.mayoclinic.org/discussion/has-anyone-had-nets-metastasized-to-heart
How was this diagnosed and how are you feeling?