← Return to How to best explain?

Discussion

How to best explain?

Neuropathy | Last Active: 6 days ago | Replies (18)

Comment receiving replies
@nellyyoung67

Hi guys hope you don’t mind me joining in on this very unique condition. Back in 2015 when I was 48 I began suffering with very strange left leg & foot sensitivity. When driving my foot would spontaneously turn inwards and slip off the clutch thus me stalling the car. It wasn’t painful but more of a sharp stab in the bottom of my foot. Then my calf went into a spasm, and my thigh would constantly ache. My GP just put it down to nerve pain coming from my neck. Then my foot was completely frozen, and I had no pulse in the whole leg, apparently I needed a Ct scan which found it straight away , blocked arteries and I had to have an angioplasty, which was uncomfortable. 6 days later my leg was completely frozen and dying by the minute, so I was rushed back into hospital. The angioplasty had crushed my arteries and caused an occlusion, so I was prepped for surgery and had to look forward to being cut from groin downwards, lower leg would need to be opened for a artery graft and because it involved my iliac artery they were more than likely going through my abdomen. 4 hours it took, I was back on the ward bout 15 minutes and my femoral artery burst open and within seconds I was swamped in my blood. I could feel myself fading away, it was the scariest thing ever. That blood loss left me with a multitude of illnesses, fibromyalgia, postural hypotension, small stroke, Horners syndrome, peripheral vascular disease, stage 3a. Kidney disease, low blood pressure. It’s been a long journey of acceptance, it’s a lonely road to travel and I so miss my very physical job, which I can’t do anymore. Hope I have not bored you all to death at this point 😳🤣

Jump to this post


Replies to "Hi guys hope you don’t mind me joining in on this very unique condition. Back in..."

Wow - @nellyyoung67, you have been given quite the test! In some ways it’s sometimes a blessing to have a definitive prognosis and medical help, but those medical solutions come with consequences too, but is usually not the recovery challenges you’ve had!

I’m glad you’re in the state of mind to share your experience. Recovery and living with your new situation is one step at a time. I hope you have a lot of physical therapy and exercises to optimize your physical health and find new activities that you can find for enjoying life. There are a lot of stories and suggestions in this Mayo Connect to make this journey easier. I’m hoping you get better soon!

Hello, Nelly! You've not bored me at all! I learn from every post I read. My situation may not be a perfect match for what every other PNer is experiencing, but I'm almost always able to find some nugget of information that reminds me of what I'm going through. I'm glad you joined the conversation. Pull up a comfy chair and make yourself at home! –Ray (@ray666)