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Immune Thrombocytopenia Purpura (ITP): What helps?
Blood Cancers & Disorders | Last Active: 1 day ago | Replies (174)Comment receiving replies
HI there. I don't mind you asking at all! My husband was 41 when he was diagnosed; he is now 69. He was otherwise very healthy. He doesn't remember whether he had any mediation before the surgery, but if he did it was not for long because they removed his spleen very soon after he was diagnosed - within 2 or 3 weeks or so. I seem to recall that the removal of his spleen was their first treatment option. He has continued to do well since then, no signs of any further problems - just had his annual visit with the hematologist yesterday and the numbers all look good; his neutrophils are a little low but nothing that has resulted in any medication or other treatment.
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My husband has been diagnosed at the age of 37, we have done a bone marrow biopsy, immune suppression infusions (those landed him in the hospital for a week due to a very rare but severe reaction), and now is on Promacta. I am curious if your husband had an ultrasound of his spleen done that showed that it was enlarged? The reason I ask is because mine did and they said it was not enlarged but since he had a bad reaction to the infusions, they said splenectomy was the next step. We discussed that we were 100% comfortable with this option and that is when we got put on Promacta. Problem is the Promacta is not working at the current dosage. They are going to up the dosage to the next level.