Bronchiectasis , MAC nebulizing and airway clearance equipment
Please advise- how do you organize the airway clearance space. I have boxes with levalbuterol, sodium chloride ( 3 and 7. %), nebulizer, vest compressor plus few extra things just in case. I am noticing I am overwhelmed with what is around me. I use a tiny desk on which there is my computer, a chair and right next to it there is a 4 shelf cabinet where I keep everything else. I do my AC in a really small room where there is no more space for anything else. How do you organize the AC space. I don’t feel like what I created so far will work for all the years I am doing my routine. Thank you and share if you have a moment
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I feel the same as I have just started all of this a week ago. I don't like the clutter so I purchased a plastic box to put the compressor in, which also holds the tubing. I have another box that holds the extra stuff and the parts I use are on the counter air drying. I cleaned out a cabinet in my den for the solutions and boxes of parts. It's kind of a pain to get things out and unpacked 2 times a day but I really don't want to stare at this stuff all day. I keep trying different setups, right now I have a folding table that I set up in the living room with my paraphernalia and then put it all away each time. I get overwhelmed when I think this is my life forever but then I try to come back to living in the moment and will take 1 day at a time. Rosemary
Thanks for sharing. Your info is useful. I’m just beginning and have all this to look forward to and am a bit overwhelmed.
The greatest thing is this connect forum, it's a gift to know we are not alone and have lots of support with others walking our walk.
To rbi, lilianna,allow
and to all who find all the "stuff" crowding us in and having to say and talk to ourselves about how we have kept things in our home in the past, how we want things to look in our home and how we may have to accept a new way of looking at things....literally and figuratively.
AND then there is this: I already had to think a few years out...I am 82.....If still doing this in a few years....and my thoughts went to: If you thought all you needed was a studio apartment in an Independent Living Community.....forget it.....put that out of your thoughts. The need will be for, at a minium, a 1 bedroom just for all the "stuff" for easy and low access (medicall "stuff" and all "things") to things so that one could have more than a walkway to get around in, such as in a studio filled with medical 'stuff " and the few things we decide to keep from the "past'. HA! and HA....... and life happens.
My first go round here in the house are the plastic see through crates with the "locking pull up ends" for the small things with one being somewhat ready for items ready for travel for the times I will be traveling in the car, like to visit a friend in the next state etc. The crates managed to fit under a large cocktail table, in what is my T.V. room, and can hardly be seen. I am not satisfied yet and hope I can reach a satisfactory arrangement. Hope we all find an answer to what we want and prefer....which probably means COMPROMISE.
Barbara
I have a 3 drawer plastic chest unit that I purchased from Walmart. The top can be used to hold your compressor as you nebulize and can stay there. The drawer unit is narrow, so it does not require much space. In the top drawer, I keep my saline vials, alcohol, cotton pads, and small Dixie cups for sputum. My middle drawer has all of my extra nebulizing cups and tubing and inhaler spacers, as well as instruction manuals. The bottom drawer holds a blood pressure cuff, a pulse oximeter, and the sputum sample containers for mailing monthly samples. Then I also have a wooden folding tv tray table where I set a plastic box with a lid that also serves as a tray. In it I keep my Arikayce nebulizer equipment. On the top I keep the pad that comes for placing equipment after nebulizing. I cover the items when not in use. There is room on that same tray table to place my Bololo baby bottle sterilizer when not in use. When I use it, it is on the kitchen counter. My nebulizing PARI parts and Aerobika are kept next to my compressor on the top of my three drawer unit. I place them on paper towels to drain and then on a dry one and cover all lightly.
I have all of this in a corner of the bedroom out of the way. It does not take up much space at all. These drawer units keep everything organized, easy to find, and free of dust. The unit was just under $20. I have a small chair sitting next to the drawer where I do my treatment.
I’m sorry that you have to go through that every day. I do the same thing, the inhaler, vest, nebulizer, aerobika, huff coughs….twice a day… and find it very time consuming. It’s comforting to follow this support group and know I’m not alone.
I don’t have a pretty solution. I keep my nebulizer on a wooden tray I could set behind end table when needed, but generally leave it out. I keep my solutions and extra tubing in a nice basket, but it seems there’s always a need for a bigger one. I keep the sinus wash bottle, Acapella and neb cups on a dedicated counter with rack in kitchen. I keep the sinus wash packets, med bottle and distilled water on desk in bedroom because I like to do last rinse at bedtime. Just before I read this, I was looking online for bookcases with solid doors on bottom to hide some of my clutter. 😀
I like using my equipment in front of computer.
Is anyone taking amakin
Do you have a hand help nebulizer or do you use a mask so your hands are free? Does it matter which kind of kit one uses? I find that I can't do anything with one hand and I don't want to feel banished to a separate room.