Lymphedema and Waldenstroms Macroglobulinemia

I too believe I was caused by the COVID shot but doctor strongly stated this couldn't be so. I have been diagnosed with MGUS then Waldenstroms after bone biopsy. This is all so new to me. Doctor stated I would not be treated with anything until disease progressed and we would wait until then.

I have to wonder if my WM was also caused by covid shots. The VA hospital discovered a proliferation of IgM proteins in 2018 and has continued to monitor as the IgM level rose from 300 to 600 in January 2023. A bone marrow biopsy was performed in Feb 2023 that determined that I had WM. The VA has continued to watch and wait, and as of September 2024 my IgM level has increased to 873. The doctors still do not want to treat my WM telling me that I have smoldering WM. It looks to me like my IgM is increasing at an accelerated rate.

Considering the timing and increased acceleration, I also think that my progression from MGUS to WM was caused by covid shots. I'd be interested in hearing from others who have experienced similar progression after getting covid shots.

In my case, I also suffered Transverse Myelitis in 2007 after getting the Hepatitis B vaccinations. So going forward, no more shots of any kind for me. I have seen four different Hematologists thus far for MGUS/WM. So important to get another doctor's perspective and expertise.