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New restless legs/Started MAC treatment
I started my MAC antibiotics, “the big 3” 10 days ago. Beginning on day 3, I started having terrible restless legs; meaning at bedtime it starts and lasts 2-3 hours. I haven’t experienced this before except on rare occasion and not for that amount of time. I lost a lot of my fluids days 1-7. Don’t know if that could have contributed to my new symptoms. The past 3 days have been much better; not losing fluids yet the restless legs continue. I hope it is coincidence and/or is just temporary. I am also a post op pelvic surgery and haven’t been able to walk much for 4 weeks. Oh! And I had my first ever shingles hit me 3 weeks ago. Ugh! When it rains, it pours! 🫠 Overall, I am feeling better this week except the restless legs are making it difficult to go to sleep at night. Thank you in advance❣️
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Golly! That’s a lot of discomfort for sure. Gabapentin is good for restless leg symptoms, but I don’t know if it interacts with MAC medication. Best. Irene5
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2 ReactionsWelcome to Connect. I’m very sorry you need to be here, but believe you’ll find it very helpful. I have bronchiectasis but not MAC and don’t have experience with the meds. I used the search function and it has been discussed as a side effect and in this thread, getting ferritin levels checked and treated helped. Disclosure-I only looked quickly and didn’t read all.
https://connect.mayoclinic.org/discussion/rifampin-side-effects/?pg=2#comment-904433
Sleep is important and I hope you get it resolved.
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2 Reactions@yaduhyaduhsquawk Wow, what a time you are having. Based on having several recent issues and the mads, I wonder if your blood chemistry is up to par? Unbalanced electrolytes,, common after digestive upsets can cause or contribute to restless legs.
Have you reported this new symptom to your primary and pulmonologist?
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2 ReactionsSue, how do you pull down a persons @ with their name to begin a reply. I have seen you use several @with their "name" by pulling down the persons @ with their "name" and then begin your response and information. I can't figure out how to do that....and I am far from being tech savy in all contempoary devices...that takes a lot of time if you didn't get onto it all from the beginning.
Barbara
Coconut water from what I have read and have been told by others is a good source to have when dehydrated.
I, for myself, with many liquids that I want to take to help with problems, I take in what I consider to be small doses (EX: like prescription medicine 3x a day) to begin with and then build up to larger doeses if I want.
You might research it to see if you would feel comfortable trying it.
Dehydration can cause many problems for us.
Barbara
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2 ReactionsIf you reply directly yo a specific post, the system adds the @[username] automatically. If it is a new discussion I am commenting on, I type it in myself. If I'm working on my computer with 2 good hands, I highlight and copy.
What each of these does is send a notification to the person that they have received a response to a post or been mentioned in one.
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1 ReactionI was diagnosed with MAC about a year ago and started on Azithromycin, Ethambutol and Arikayce. I have always had some restless leg but I had to start on 0.5 mg Requip. My ID changed me to Azithromycin, Rifampin and Clofazimine 3 months ago due to side effects. My restless leg skyrocketed to all day and all night and had to double my dose of Requip. I worry about augmentation with the Requip.
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1 ReactionI have been taken off arikayce and am waiting on approval for clofazime. Am still on antibiotics. How are you tolerating the clofazamine? Side effects etc?
I haven’t noticed any side effects from the Clofazimine.
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