Severe Neuropathy in legs and feet and not a diabetic or alcoholic

Posted by jbb12 @jbb12, Sep 3 10:18am

Dealing with this neuropathy pain for over 3 years. Happened one month after I had an emergency appendectomy at the age of 70. Sudden onset of severe pain in legs and feet. Was not gradual pain. Been to 3 neurologists. Nothing has worked. I am not a diabetic and never drank alcohol. Tried different medication such as gabepentin, etc. tried epidurals, acupuncture, cryotherapy, stem cell therapy ($9000 which insurance did not cover). I have appointments with a fitness trainer to do my best to stay in shape, which exercising is getting so difficult. I am not overweight and have always been physically fit. I’ve had nerve tests, scans, etc. run with nothing conclusive. Said some stenosis. Next is doing an ablation on the nerve but don’t know if that will work either. Can anyone advise what to do next?

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@jbb12 Your PN may not be related directly to the surgery but you’re 70 y.o. and like most people you most likely have issues with your lower back. You mentioned stenosis as one possibility so have you had an MRI of your spine yet? You mentioned a physical trainer? I’d suggest a PT instead before a trainer. Let a PT evaluate your back and recommend some exercises to help you out. As you age your back will not improve unfortunately no matter what you do but you can hopefully control it. Good luck.

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@pumpiron3

I have had 4 Back Surgeries. I'm 86 and have Balance problems from the Neuropathy and the Surgeries. I went to Physical Therapy for 3 years and I'm now doing all my exercises at home. My quadriceps and calves are very developed at this time from all my exercises to strengthen my legs I also do balance exercises using balance pad. Unfortunately my balance hasn't improved much. I still need a cane. Has anyone found a Physician who says he can really treat Neuropathy. I've taken Gabapenten 3x a day for over 10 years doesn't help balance.

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There are MANY physical therapy exercises you can do daily that will help you with your balance!! 🙂 Look on YouTube for videos where physical therapists demonstrate "exercises for balance problems with peripheral neuropathy" and you will see many helpful things to do! 🙂

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@vicscats

I’m 70. And have mycrocytic anemia
With iron tests all wrong
I just don’t feel right
Graves’ disease/diabetes
Cervical/ lumbar severe spinal stenosis

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Hello 🙂 To be honest with you, at age 70, with diabetes (maybe under control and maybe not), Grave's Disease and your spinal issues, I would not expect for your blood tests to be really normal or for you to "feel very well," unless and until you have those things well under control, using specialists like an endocrinologist (for your diabetes and your Grave's disease), a hematologist for your microcytic anemia, and a spine doctor for your neck and low back issues. Getting your glucose under control, lowering the inflammation in your body generally, and also getting your thyroid as normalized as possible is in my opinion, the answer to "feeling better." All of those conditions - or any one of those conditions - can make a 30-40 year old feel badly, let alone someone who is 70. Good luck!

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@circawdm

There are MANY physical therapy exercises you can do daily that will help you with your balance!! 🙂 Look on YouTube for videos where physical therapists demonstrate "exercises for balance problems with peripheral neuropathy" and you will see many helpful things to do! 🙂

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Thank you. I 've been in PT 2X a week for 3 yrs.and do all the exercises at home. I'm a former athlete and licensed Personal Trainer. I taught Balance Classes and was a Director of Exercise programs at an over 55 Community.
The Neuropathy is the result of pressure on my Spine and Stenosis. I've had 4 Back Surgeries but nothing is improving my balance.
I've had all of the test wit pins, needles, electric and radio waves.My Neurosurgeon and Neurologist tell me there is no cure for Neuropathy. The exercises are keeping me out of needing a Wheelchair.

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Have any of you heard of Calmare Scrambler Therapy. Check it out on Google. I plan to get my husband to do it. It’s not successful for everyone, but it does have a high success rate.

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@felicelinda

Have any of you heard of Calmare Scrambler Therapy. Check it out on Google. I plan to get my husband to do it. It’s not successful for everyone, but it does have a high success rate.

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Never heard of it, but sounds interesting

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Hi
I have had neuropathy for many years (Im 63) and also do not drink alcohol neither am I diabetic.
The things that helped me was Palmitoyethanolamide (PEA) a natural compound that has a well-established use in chronic neuropathic pain. When I started taking it reduced my pain by 60 to 70% . You need a good quality product and 300mg PEA daily. Its action is to do with the cannabinoid receptors. (I use Enzyme Science PEA+ with curcumin) Although you can get PEA on its own (Metagenics brand), If you are on other meds the combination products may limit its use, but PEA on its own has a great safety profile.
Additionally OOFOS jandels and shoes, they were a god send.
Worth a shot I say 🙂 All the best

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@josieglow

Hi
I have had neuropathy for many years (Im 63) and also do not drink alcohol neither am I diabetic.
The things that helped me was Palmitoyethanolamide (PEA) a natural compound that has a well-established use in chronic neuropathic pain. When I started taking it reduced my pain by 60 to 70% . You need a good quality product and 300mg PEA daily. Its action is to do with the cannabinoid receptors. (I use Enzyme Science PEA+ with curcumin) Although you can get PEA on its own (Metagenics brand), If you are on other meds the combination products may limit its use, but PEA on its own has a great safety profile.
Additionally OOFOS jandels and shoes, they were a god send.
Worth a shot I say 🙂 All the best

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Thanks for that info josieglow. It sure sounds it's worth a try.

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@josieglow

Hi
I have had neuropathy for many years (Im 63) and also do not drink alcohol neither am I diabetic.
The things that helped me was Palmitoyethanolamide (PEA) a natural compound that has a well-established use in chronic neuropathic pain. When I started taking it reduced my pain by 60 to 70% . You need a good quality product and 300mg PEA daily. Its action is to do with the cannabinoid receptors. (I use Enzyme Science PEA+ with curcumin) Although you can get PEA on its own (Metagenics brand), If you are on other meds the combination products may limit its use, but PEA on its own has a great safety profile.
Additionally OOFOS jandels and shoes, they were a god send.
Worth a shot I say 🙂 All the best

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I will try PEA...OOSO also the best!
Thanks for the info.

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@26sabrina

Have your doctor check your B6 level. I went through the same thing for 7 years before a new neurologist checked, my B6 was sky high. I only take a multivitamin. We stopped the vitamins and my neuropathy is getting better.

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I had that very same problem last year. I had tons of tests for MS, Parkinson's, diabetes, etc. and nothing. Finally a neurologist checked by B6 and it was very high and I was only taking it in a multivitamin as well. She had me get off all B6 and it took about 3 months but I finally got back to normal. Most doctors don't know about B6 toxicity. I know because after I found out what the problem was and told my other doctors they either admitted they didn't know B6 could do that since it is supposed to be water-soluble or they acted like they didn't believe me.

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