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EPI meds expense
On Medicare, Medicare supplement and Cigna scrip insurance. My meds are NOT covered. I appealed and my appeal was denied. The “discount card” is not for Medicare patients. I cannot afford my medicine as it costs more than I even receive from SS. I don’t know what else to do. I was misdiagnosed for 30+ years and now that we have finally found a med that works I cannot afford it. I don’t know what else to do. Maintaining weight is not working, currently at 106. with osteoporosis and anemia due to the long term misdiagnosis. I am willing to try just about anything at this point.
I realize I’m not the only one but I live in a small town and just found this group. Any suggestions or help would be appreciated. I’m embarrassed that I cannot afford my medicine and while I know that there are other people my age experiencing the same issues, I just never imagined that it would be me too.
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My Creon has been increased to 24,000 units, taking 3-4 per meal and 2-3 for snacks. That still didn't do a whole lot, but I have recently been prescribed Colestipol 1GM tablets, and taking 2 tablets twice a day. I started it October 14th. This might be actually working, so far. I still have significant discomfort on the upper right side, But I have had a "normal" BM for the past 5 days. The doctor felt like I was experiencing BAM (Bile Acid Malabsorption). I do not have a gallbladder. He also recommended that I lean into a FODMAP diet. Fingers crossed.
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1 ReactionConflicting information on diet. Should you eat tight fiber or low fat.
Sorry, should be high fiber or low-fat diet for EPI
My understanding is you should be on a low-fiber diet.
The fodmap and Rosemay oil did wonders for me after I added it to my regiment of Creon. Good luck.
I am a retired senior and applied to their patience assistance program and was approved for non cost for a year. But Vitals pancreatic enyzmes are very equivalent at 39.00 for a bottle of 90. I used them successfully before beginning creon.
These work. I took these before getting approved for creon patient assistance.
Better help than elsewhere. Patients living with it. Thanks.
Anthem BCBC hmo ppo
I’ve been waiting to see if Abbvie can help me with some of the cost. We are sad, yes we are. Thanks for sharing. My appeal was denied. Donut hole and was told I needed prior authorization. Hang in there.
Rebecca
Hi I just joined I was diagnosed with EPI 10 years ago I took the Zenpep but it was super expensive.I found it did not really help me and stopped.
Now I am 65 and start to have heat indigestion really severe and pale loose stool.
Trying to stay healthy with green red and orange veggies and fruit .No bread or grain.
Cheese dairy chicken fish eggs mostly.
2 good days a week 2 bad ones and 3 in between .
Wonder if I should give the enzymes another go