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Want to connect with others with Splenic B cell Marginal Zone Lymphoma
Blood Cancers & Disorders | Last Active: Nov 15, 2024 | Replies (329)Comment receiving replies
Stanley Kent, your symptoms were like mine. I ate 3/4 less food, never really hungry, felt enlarged spleen, had night sweats and fatigue. Since 4th treatment of Rutixmed in June 2024, I have gained 29 lbs back and constantly wanting carbs and sugar. Originally from CA, moved to Spokane WA 7 years ago. Now in Arizona
Replies to "Stanley Kent, your symptoms were like mine. I ate 3/4 less food, never really hungry, felt..."
@jam1962, did the treatment reduce the size of your spleen? How are you feeling now?
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jam1962
Just an update.
That was March of 2023 that I had commented and I had the 4 rituxan treatments in Sept 2022 At that time I felt good. My spleen has reduced in size, Lymphocytes were in normal range and platelets were also within normal range. I see the hematologist every six months and my recent October visit continued to show everything is slowly progressing back. The spleen is larger, platelets and lymphocytes are now out of normal range. But I feel good and only have a continuous tiny bit of spleen discomfort. The hematologist is pleased that I'm feeling well and that I have not had other symptoms and the SMZL is currently on a slow progression. So I'm on watch and wait and will see him again in April.
Thanks for the comment and good luck to you.