Severe dry tongue and mouth, burning lips, cheeks, and nose

Posted by burnned2much @burnned2much, Oct 16 2:40am

I posted this in here nose and throat also just thought I would post it here in case there were other thoughts or possibilities
I have Constant Burning lips, numbness and constant burning in cheeks and nose along with severe dry tongue and mouth,I also have severe neck pain.
This started After getting Covid in November 2023. After I got Covid I immediately got the neck pain And quickly spread to burning lips and face. Never seems to go away if it isn’t burning it is totally numb..
Mouth is so dry. I wake at night and have to drink water. This is persisted for a full year now and progressing . I am not sure what is going on if anybody else has experienced this please share with me.
Ear nose and throat doctor says it is coming from my brain, if I press on the side of my neck. It does stop the burning and my entire face And lips definitely seems more mechanical to me. I did have disc replacement surgery with mobi-c implants 4years ago which caused full body muscle spasms and burning Neuropathy, but it was not in my face until I contracted covid one year ago.
I pray for relief every day and some sort of solution, but it seems like I’m just being thrown around from Dr to Dr with no prognosis.
Thank you any Shared thoughts or solutions would be greatly appreciated.

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jenatsky | @jenatsky | Oct 27 7:00am

In reply to @burnned2much "I’m so sorry to hear that, but thank you for sharing. It’s been almost 5 years..." + (show)

@burnned2much sounds like you may have long covid and suggest you seek out a long-covid specialist at one of the teaching hospitals.

burnned2much | @burnned2much | Oct 28 11:39am

In reply to @katgusman "Have them check for sjogrens" + (show)

I have been tested for Sjogrens as per my request!
Results were negative
Thank you for You were suggestion much appreciated.

jmb73 | @jmb73 | Oct 29 7:09am

In reply to @burnned2much "I have been tested for Sjogrens as per my request! Results were negative Thank you for..." + (show)

Even though you don't have Sjogrens, you could still do some of the treatments that we do. I use only Biotene products for my teeth and mouth. Plus, I spray my mouth when it gets dry. I was even allowed to use the Biotene mouth spray before hip surgery. My husband doesn't have Sjogrens but he uses the spray too. I use medical marijuana for my pain. I take the edibles but if I am in really bad pain, I use the drops. If you decide to try it, have a consult with a representative to determine what you need and then take a low dose and go slow until you are getting relief . good luck. I hope you feel better.

jenatsky | @jenatsky | Nov 4 6:50pm

@burnned2much check this out https://www.mayoclinic.org/diseases-conditions/burning-mouth-syndrome/symptoms-causes/syc-20350911

BrendaY | @brenday43 | Nov 6 10:55am

In reply to @julie638 "I was just looking on Amazon for the oil you put on your feet before bed..." + (show)

Hi Julie638.. Maybe you have found the oil I suggested for your problems.. but if not..
go to Amazon and do a search for

Frankincense & Myrrh

Sorry that I can't send a picture of it to you.. but it in new packaging.. Used especially for Neuropathy and mentions Feet on the label.. It worked wonders for my poor aching burning feet when I was suffering from Erythromelalgia, but Diabetics also use it. Over the counter and not expensive to use, even though it comes in a small bottle with a dropper. You can use a few drops along with hand lotion, apply to area you need relief.. It's okay to use more drops, or even full strength if needed. Using the lotion with it makes a little bit go farther, of course.

I hope this helps you.. and I have heard that it is available at Walmart stores, too..