1. < Neuroendocrine Tumors (NETs)
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Anyone have hair loss with lanreotide?

Posted by nana120 @nana120, Feb 3, 2024

After 8 months on lanreotide I am getting the diet down and no longer losing weight, but my hair loss is beginning to be noticeable. Will it stabilize like my weight? If not, I may eventually be bald. My second CT on my liver NETS is March 8, 2024 & hoping for continued slowing of the growth.

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

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joy5877 | @joy5877 | Nov 4, 2024
In reply to @splendrous "I have had very good success with minoxidil 2.5mg once a day. It takes time. 6..." + (show)
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I have had very good success with minoxidil 2.5mg once a day. It takes time. 6 months to a year. So not an overnight treatment. Same drug that is in rogaine foam treatment but much easier as a pill. Highly recommend for thinning hair.

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Is the minoxidil a prescription? Who prescribed it for you?

I am having hair loss as well. I am not sure if it is from the shot, anesthesia, or loss of vitamins from the diarrhea.

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splendrous | @splendrous | Nov 4, 2024

It is a generic drug. Not expensive. I had my oncologist prescribe, but a primary or dermatologist could also.

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rachel333 | @rachel333 | 16 hours ago
In reply to @roseflame "Hello Nana120, I have been on Lanreotide for 14 months and have lost at least 70-80%..." + (show)
Profile picture for roseflame @roseflame

Hello Nana120, I have been on Lanreotide for 14 months and have lost at least 70-80% of my once-thick, curly hair. I have been so depressed by this happening. My doctor also denies it’s the drug but blames it on “your age.”

I have never had hair loss in my life, and I’ve been old for a while (I’m 78). My dermatologist suggested Rogaine, but the directions say that causes initial loss before beginning to improve, and Im scared to cause more loss, fearing becoming completely bald.

I keep telling myself that given that the drug is prolonging my life, losing my hair is a small price to pay, but it is still a very disturbing situation.

Best wishes to us all.

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@roseflame There is a shampoo from Humby organics that is blueberry and it helps. You can skip the whole kit and just get the bar for cheaper. I am going to start doing smashed blueberry and coconut oil masks on mine. It's my 2nd month and I am seeing loss. Blueberries grow hair! Good luck!

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maeve115 | @maeve115 | 10 hours ago
In reply to @rachel333 "@roseflame There is a shampoo from Humby organics that is blueberry and it helps. You can..." + (show)
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@roseflame There is a shampoo from Humby organics that is blueberry and it helps. You can skip the whole kit and just get the bar for cheaper. I am going to start doing smashed blueberry and coconut oil masks on mine. It's my 2nd month and I am seeing loss. Blueberries grow hair! Good luck!

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@rachel333
Interesting thread. I had hair loss but it stabilized with time. My Doctor said it is not a side effect that is listed, but I suspect otherwise.. How I feel about it: Definitely, Yes a bit of vanity and Yes to a bit of gratitude that the Lanreotide is working on progression and symptoms..

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Teresa, Volunteer Mentor | @hopeful33250 | 10 hours ago
In reply to @rachel333 "@roseflame There is a shampoo from Humby organics that is blueberry and it helps. You can..." + (show)
Profile picture for rachel333 @rachel333

@roseflame There is a shampoo from Humby organics that is blueberry and it helps. You can skip the whole kit and just get the bar for cheaper. I am going to start doing smashed blueberry and coconut oil masks on mine. It's my 2nd month and I am seeing loss. Blueberries grow hair! Good luck!

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Hello @rachel333 and welcome to the NETs support group on Mayo Clinic Connect. As this is your first post, please share, as you are comfortable, a little about your journey with PD.

Is this a new diagnosis for you?

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