Any suggestions on what time of day is best for taking Hydroxyurea?

Yes, I am aware of all of that. Thank you though. My daughter has a very rare blood disorder and Hydroxyurea is the medication her hematologist is wanting to "try". So, I've been doing much research on the topic.

As Lori says, HU is widely used for a range of blood disorders and cancers. It is easy to get and it's inexpensive.

While some people experience problems with HU, most of us take it without any complications. Some individuals on this forum have been taking HU for decades.

For me, HU has brought significant relief from the fatigue and headaches of my blood cancer, ET with the MPL driver.

Hearing we have a blood problem we've never even heard of before is terrifying. Our oncologists are usually too busy to chat about our concerns. And for our primary care physicians may know nothing about our blood disorders or cancers, because as you say, they are very rare.

But on this forum, you're among friends who know what you're going through. This is a great place to ask questions and learn how to move forward.

I’m happy you’ve joined us in Connect. @janemc wrote, you are among friends here so if there’s anything we can help you with just let us know.

There’s a diverse array of blood disorders represented in our support group. I may be able to connect you with other members. Would you mind sharing your daughter’s very rare blood disorder? How long ago was she diagnosied?

I have been on it for nearly one month, and I always take it at night (bedtime) with a cracker or something small to eat so it doesn't enter my system on an empty stomach. DRINK A GLASS OF WATER WITH IT!

The reason I take it at bedtime is that I believe I can sleep through any immediate side effects the drug might produce. (Just my belief, do as you wish)

Drink as much water as you can throughout the day. This med leaves your mouth extremely dry.

HINT: Put a healthy bit of water into your mouth and hold it there. Tilt your head back and drop the capsule into the back of your mouth where the water is and swallow quickly. If you hold it in your dry mouth before drinking the water to swallow it, you will likely have a painful sore or stinging tongue within a few days. Yes, it is a powerful drug. Don't let it touch your skin and if it does, wash your hands thoroughly! Just drop one capsule into the prescription bottle cap and deposit it directly from the cap into the back of the mouth with the water in your mouth to start.

Side effects are different for everyone, but go into it with a positive attitude and DRINK LOTS of WATER throughout the day. Stay out of the sun unless you have on protective clothing and sunscreen and look at diet recommendations for a diet that is complementary to PV or whatever disorder your daughter has.

Remember this: Not all drugs are compatible with all people who take them. If for some reason Hydrea doesn't work, there are other drugs she can try.

Best of luck to you and your daughter. We're all in this together!

@pesterthief, I found this information:
"Primary idiopathic myelofibrosis is a rare myeloproliferative condition which can present with associated ocular features like intraretinal haemorrhages, vascular occlusion, retinal neovascularisation and angle-closure glaucoma." https://pmc.ncbi.nlm.nih.gov/articles/PMC6557368/#:~:text=Primary%20idiopathic%20myelofibrosis%20is%20a%20rare%20myeloproliferative%20condition%20which%20can,neovascularisation%20and%20angle%2Dclosure%20glaucoma.

What kind of eye issues are you experiencing?

My eyes are very red and irritated all the time