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@dherrman2

I have been on 1000 mg for 15 years. I may have some hair thinning, but that is not terrible. I have PV. I do get my phlebotomies and my platelets are around 600. I am now on Methotrexate for my RA. Waiting to see if I have any side affects.

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Replies to "I have been on 1000 mg for 15 years. I may have some hair thinning, but..."

Thank you. Best of luck to you in your PV journey.

I've also been in 1000mg, for ten years. Just turned 70, quite active, playing doubles tennis twice a week.
I've had no symptoms so far (Essential Thrombocytosis), but now my oncologist is reducing my dosage to 500 mg, and wanting to try to get to zero.
Obviously very concerned with the stroke risk, but don't know at what platelet count the risk trump's the risk from hydroxyuria.