Thanks for that summary. ❤️🩹 I’m sorry you’ve been through this.
My LGASC was found on my annual mammogram. I was not able to feel it and didn’t have any symptoms out of the ordinary. I was diagnosed on September 27, 2024. (Very grateful for the eagle-eyed radiologist who recognized the difference on my mammogram.)
Do you mind sharing how old you are? I am 59. (Im only asking to continue to put together our LAGSC puzzle pieces.)
My nipple-sparing mastectomy and reconstruction on October 23 went well. The pathology report confirmed the tumor in my left breast was Low Grade Adenosquamous Carcinoma and that there was no other kind of cancer in the tumor.
There were no other tumors and my lymph nodes were clear.
However, my right breast (which had looked clear on the mammogram, MRI and ultrasound) did include atypical cells. So, I am very glad I chose to have the bilateral mastectomy.
The nipple sparing procedure went well, and the plastic surgeon is very optimistic.
Overall, my pain is well managed. I really hate the drains! But I am getting around well, taking walks outside, and sleeping well.
So that’s my update. It’s an ordeal, no doubt about it. But I’m glad that the cancer is removed.
As of now, I do not need any radiation due to catching the LGASC cancer early and it being very small. I’ll add more after I have my additional debrief with my oncologist and breast surgeon.
My nipple-sparing mastectomy and reconstruction on October 23 went well. The pathology report confirmed the tumor in my left breast was Low Grade Adenosquamous Carcinoma and that there was no other kind of cancer in the tumor.
There were no other tumors and my lymph nodes were clear.
However, my right breast (which had looked clear on the mammogram, MRI and ultrasound) did include atypical cells. So, I am very glad I chose to have the bilateral mastectomy.
The nipple sparing procedure went well, and the plastic surgeon is very optimistic.
Overall, my pain is well managed. I really hate the drains! But I am getting around well, taking walks outside, and sleeping well.
So that’s my update. It’s an ordeal, no doubt about it. But I’m glad that the cancer is removed.
As of now, I do not need any radiation due to catching the LGASC cancer early and it being very small. I’ll add more after I have my additional debrief with my oncologist and breast surgeon.
@susan7656
I am so glad it was caught early and the procedure went well!
Do they think the atypical cells in the other breast could be LGASC? I was told it is rare to have it in both breasts, so I’m curious as to what they thought.
Also, I was told that cancer could come back in the nipples. Did they say that to you when you wanted nipple sparing?
@susan7656
I am so glad it was caught early and the procedure went well!
Do they think the atypical cells in the other breast could be LGASC? I was told it is rare to have it in both breasts, so I’m curious as to what they thought.
Also, I was told that cancer could come back in the nipples. Did they say that to you when you wanted nipple sparing?
@mchler73 - the pathology report for the right breast only said “atypical cells.” I don’t think it is known what type of cancer those were going to evolve to. However, I will ask my oncologist when I have my next appointment.
I personally did not request the nipple sparing procedure. I chose a bilateral mastectomy because I did not want a lumpectomy and radiation. I did not want the surveillance that would have been required had I only had a lumpectomy. I did not want to constantly worry about the cancer reoccurring in either breast. And the breast surgeon did say that for her triple negative patients, she almost always recommended the bilateral mastectomy (but would have been willing to do the lumpectomy and radiation if I was intent on breast conservation, which I was not).
The nipple sparing mastectomy was recommended by the breast surgeon and the plastic surgeon. They said, however, that if there were any cancer cells in the nipples, that the nipples would not be spared. I understood that and had to sign consent before surgery. I did not let myself get too focused on the nipple sparing aspect. I honestly just wanted the bilateral and the reconstruction. If the nipples were spared, great. But I was not hung up on this in any way.
However, no cancer in the nipples was found during the mastectomy. Only the one small tumor was found and it was located away from the areola and the nipple.
I do meet with the breast surgeon next week and will inquire about the chance of it coming back in the nipples and I will let you know what answer is given.
@mchler73 - the pathology report for the right breast only said “atypical cells.” I don’t think it is known what type of cancer those were going to evolve to. However, I will ask my oncologist when I have my next appointment.
I personally did not request the nipple sparing procedure. I chose a bilateral mastectomy because I did not want a lumpectomy and radiation. I did not want the surveillance that would have been required had I only had a lumpectomy. I did not want to constantly worry about the cancer reoccurring in either breast. And the breast surgeon did say that for her triple negative patients, she almost always recommended the bilateral mastectomy (but would have been willing to do the lumpectomy and radiation if I was intent on breast conservation, which I was not).
The nipple sparing mastectomy was recommended by the breast surgeon and the plastic surgeon. They said, however, that if there were any cancer cells in the nipples, that the nipples would not be spared. I understood that and had to sign consent before surgery. I did not let myself get too focused on the nipple sparing aspect. I honestly just wanted the bilateral and the reconstruction. If the nipples were spared, great. But I was not hung up on this in any way.
However, no cancer in the nipples was found during the mastectomy. Only the one small tumor was found and it was located away from the areola and the nipple.
I do meet with the breast surgeon next week and will inquire about the chance of it coming back in the nipples and I will let you know what answer is given.
@susan7656
That is very helpful information. And I’m still so curious about the LGASC and CHEK2 mutation. I see my oncologist in December.
We will have to continue to share what we find out.
Continue to rest and heal!
@susan7656
That is very helpful information. And I’m still so curious about the LGASC and CHEK2 mutation. I see my oncologist in December.
We will have to continue to share what we find out.
Continue to rest and heal!
The CHEK2 connection between us is interesting since we both have LGASC. My oncology meeting is in a few weeks. I’ll share any insights I learn. By the way, do you have a genetic counselor in addition to an oncologist?
The CHEK2 connection between us is interesting since we both have LGASC. My oncology meeting is in a few weeks. I’ll share any insights I learn. By the way, do you have a genetic counselor in addition to an oncologist?
I saw my radiation oncologist and told her my back was bothering me, so she ordered a thoracic spine MRI. I had the MRI today and then I drove straight home which took me 5 minutes. I got home and before I could sit down, the radiation oncologist called and told me that I have lesions on my spine. One was a small hemangioma and 4 other tumors on 4 other vertebrae they are not sure of. The MRI report says that they could be atypical hemangiomas, but metastatic disease can't be ruled out. She immediately called my breast oncologist, and they are sending me to another state to have a pet scan radionuclide. Apparently, no hospital in my large metropolitan area including a teaching hospital has this equipment. Hopefully this isn't metastasis. I am concerned because my first breast cancer in 2020 had perineural invasion into a large nerve.
Have any of you had a Pet Scan radionuclide? If so, could you tell me what to expect?
I saw my radiation oncologist and told her my back was bothering me, so she ordered a thoracic spine MRI. I had the MRI today and then I drove straight home which took me 5 minutes. I got home and before I could sit down, the radiation oncologist called and told me that I have lesions on my spine. One was a small hemangioma and 4 other tumors on 4 other vertebrae they are not sure of. The MRI report says that they could be atypical hemangiomas, but metastatic disease can't be ruled out. She immediately called my breast oncologist, and they are sending me to another state to have a pet scan radionuclide. Apparently, no hospital in my large metropolitan area including a teaching hospital has this equipment. Hopefully this isn't metastasis. I am concerned because my first breast cancer in 2020 had perineural invasion into a large nerve.
Have any of you had a Pet Scan radionuclide? If so, could you tell me what to expect?
FYI........I just found out that the other hospitals do have the PET Scans however they just don't have the tracer that will be used in my estradiol Pet scan.
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@susan7646
Yes, so glad the Radiologist noticed it! And I hope your surgery and recovery go smoothly!
I am 50 but was 49 at the time of my diagnosis.
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2 ReactionsHi @mchler73 and @katrina123 –
My nipple-sparing mastectomy and reconstruction on October 23 went well. The pathology report confirmed the tumor in my left breast was Low Grade Adenosquamous Carcinoma and that there was no other kind of cancer in the tumor.
There were no other tumors and my lymph nodes were clear.
However, my right breast (which had looked clear on the mammogram, MRI and ultrasound) did include atypical cells. So, I am very glad I chose to have the bilateral mastectomy.
The nipple sparing procedure went well, and the plastic surgeon is very optimistic.
Overall, my pain is well managed. I really hate the drains! But I am getting around well, taking walks outside, and sleeping well.
So that’s my update. It’s an ordeal, no doubt about it. But I’m glad that the cancer is removed.
As of now, I do not need any radiation due to catching the LGASC cancer early and it being very small. I’ll add more after I have my additional debrief with my oncologist and breast surgeon.
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4 Reactions@susan7656
I am so glad it was caught early and the procedure went well!
Do they think the atypical cells in the other breast could be LGASC? I was told it is rare to have it in both breasts, so I’m curious as to what they thought.
Also, I was told that cancer could come back in the nipples. Did they say that to you when you wanted nipple sparing?
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Helpful -
Hug
1 Reaction@mchler73 - the pathology report for the right breast only said “atypical cells.” I don’t think it is known what type of cancer those were going to evolve to. However, I will ask my oncologist when I have my next appointment.
I personally did not request the nipple sparing procedure. I chose a bilateral mastectomy because I did not want a lumpectomy and radiation. I did not want the surveillance that would have been required had I only had a lumpectomy. I did not want to constantly worry about the cancer reoccurring in either breast. And the breast surgeon did say that for her triple negative patients, she almost always recommended the bilateral mastectomy (but would have been willing to do the lumpectomy and radiation if I was intent on breast conservation, which I was not).
The nipple sparing mastectomy was recommended by the breast surgeon and the plastic surgeon. They said, however, that if there were any cancer cells in the nipples, that the nipples would not be spared. I understood that and had to sign consent before surgery. I did not let myself get too focused on the nipple sparing aspect. I honestly just wanted the bilateral and the reconstruction. If the nipples were spared, great. But I was not hung up on this in any way.
However, no cancer in the nipples was found during the mastectomy. Only the one small tumor was found and it was located away from the areola and the nipple.
I do meet with the breast surgeon next week and will inquire about the chance of it coming back in the nipples and I will let you know what answer is given.
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Helpful -
Hug
1 Reaction@susan7656
That is very helpful information. And I’m still so curious about the LGASC and CHEK2 mutation. I see my oncologist in December.
We will have to continue to share what we find out.
Continue to rest and heal!
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Like -
Helpful -
Hug
1 ReactionThe CHEK2 connection between us is interesting since we both have LGASC. My oncology meeting is in a few weeks. I’ll share any insights I learn. By the way, do you have a genetic counselor in addition to an oncologist?
@susan7656
I don’t have a genetic counselor. Do you?
My new oncologist brought it up at my last appointment.
@mchler73 No, I do not have one at this time. I will ask my oncologist if that addition would be of value.
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1 ReactionI saw my radiation oncologist and told her my back was bothering me, so she ordered a thoracic spine MRI. I had the MRI today and then I drove straight home which took me 5 minutes. I got home and before I could sit down, the radiation oncologist called and told me that I have lesions on my spine. One was a small hemangioma and 4 other tumors on 4 other vertebrae they are not sure of. The MRI report says that they could be atypical hemangiomas, but metastatic disease can't be ruled out. She immediately called my breast oncologist, and they are sending me to another state to have a pet scan radionuclide. Apparently, no hospital in my large metropolitan area including a teaching hospital has this equipment. Hopefully this isn't metastasis. I am concerned because my first breast cancer in 2020 had perineural invasion into a large nerve.
Have any of you had a Pet Scan radionuclide? If so, could you tell me what to expect?
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Like -
Helpful -
Hug
3 ReactionsFYI........I just found out that the other hospitals do have the PET Scans however they just don't have the tracer that will be used in my estradiol Pet scan.
Katrina123
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