Benign fasciculation syndrome (BFS)

Posted by captainanxiety8 @captainanxiety8, Mar 10, 2019

Not sure if this is the right place to ask this, but I'm really not sure how to interpret what's going on. I'm 40, have had random twitches now and then around my body for a few years and ignored them. Mentioned it to my Doctor last year during my annual routine health check and she said it's likely just stress and ignore it. Got sick a month ago, high fever, headache, dizziness, chills, and near constant twitching in different spots all over my body. My knees were going crazy and my biceps were twitching, I felt like my body was malfunctioning. I was also itching all over and my extremities were aching, especially in my feet and hands, but when I pressed or touched my feet or hands, there was no pain spot.

Two weeks after I got referred to a Neurologist who checked my strength, did not do any EMG or MRI, no other tests, just testing if I could physically push back or feel anything below my knees and past my elbows. He laughed and said I have benign muscular fasciculation syndrome and gave me some Xanax. I went for a second opinion and got the same diagnosis, benign muscular fasciculation, and was asked to return after a few months to check on me. The twitching is not as constant as before, but it's still happening, arms, lower and upper legs, knees, neck, shoulder, chest, they last a few seconds and stop. I can't sleep, the itching and the twitching wakes me up at night. The twitching does not go away when I move the muscle, it keeps twitching. Has anyone else ever had anything like this? If so, how or did it resolve?

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@vivipap20

Wish you all the best . Please keep us post it . My husband also has itching with the twitches ….
Well at night with nocturnal myoclonus . Did you have an EMG ? .

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What were the EMG results, Milly?

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@vivipap20

Wish you all the best . Please keep us post it . My husband also has itching with the twitches ….
Well at night with nocturnal myoclonus . Did you have an EMG ? .

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@vivipap20
Has your husband been prescribed any antiseizure medications?
Jake

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All good with the EMG. I hope for all of our sake’s we can just relax and learn to live with our new normal. This is very common these days!

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Milly thank you for the update!!! I'm glad its normal like alot of ours were...seems like we arent alone. I've had alot of fasculations in my lower legs the past few days i just keep telling myself my emg and head mri were normal...don't know what else to do other than revisit the neuro doc but not sure what other testing he would do. Im an rn so being the patient isn't easy. Doctors only know how to prescribe. I guess it's just benign.

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@jakedduck1

@vivipap20
Has your husband been prescribed any antiseizure medications?
Jake

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No … never . All this is me to him . Never diagnosed with seizures . He has an appt with neurologist on December.

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@milly54

All good with the EMG. I hope for all of our sake’s we can just relax and learn to live with our new normal. This is very common these days!

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Glad EMG was good . So happy for you !! Did your doctor said you need a follow up ? Or what did he say is causing your symptoms ?

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No needed follow up and no rhyme or reason why it started. I think mine was caused by the summer from hell. Soooo much stress and I also had a mild case of COVID-19. Just too much for the body to process with a five alarm fire nervous system. Best to accept our new normal.

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@fela0218

Milly thank you for the update!!! I'm glad its normal like alot of ours were...seems like we arent alone. I've had alot of fasculations in my lower legs the past few days i just keep telling myself my emg and head mri were normal...don't know what else to do other than revisit the neuro doc but not sure what other testing he would do. Im an rn so being the patient isn't easy. Doctors only know how to prescribe. I guess it's just benign.

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You’re okay. The EMG’s are very powerful and my neurologist said the immediate findings when there’s a real issue are profound.

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@fela0218

What were the EMG results, Milly?

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EMG all clear.

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@fela0218

Milly thank you for the update!!! I'm glad its normal like alot of ours were...seems like we arent alone. I've had alot of fasculations in my lower legs the past few days i just keep telling myself my emg and head mri were normal...don't know what else to do other than revisit the neuro doc but not sure what other testing he would do. Im an rn so being the patient isn't easy. Doctors only know how to prescribe. I guess it's just benign.

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Does anyone have leg fatigue and stiffness or just fascicultions ?
Thanks
Viv

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