Morning<br> Can you kindly remove my e mail address from the email listing? thanks<br>

Hi April, You can change your email notification preferences in Account Settings here: https://connect.mayoclinic.org/account

@johnjames There is no specific disorder that I'm researching. I just noticed a lot of conversations regarding neurological problems, especially Parkinson's-like symptoms, and decided to open it up for discussion. It is good to see all of the posts. It has certainly been enlightening (as well as frightening) to see how many people have serious health problems related to AO. I hope that the dialogue continues and we can allow people a place to express their concerns.

Colleen- did my email go through jjames

It did and I sent you a reply. Did you check your spam? I will write you a private message.

College,<br> I am again writing to see if there is anyone who has been diagnosed with a cerebellum atrophy of the brain. My husband was diagnosed at Mayo Clinic in Jan. of 2015 in Rochester, Minnesota. He was given 3 to 4 years to live. It has been a year and a half since diagnosis. He is now walking with a cane and has trouble speaking clearly. He will soon have to use a walker. Then will be in wheelchair and probably pneumonia will set in and cause death. No one has responded to my post. This thing must be very rare.<br> Noreen

@howardjames
I had not yet heard of this one. I must say that I am very sorry for both of you, and that I find this condition very interesting. May I ask how they found the condition? MRI? CT scan?

MRI scan. This was taken to Mayo Clinic in Rochester and they did further tests and gave prognosis of 3 to 4 years to live. I have not found anyone with this diagnosis on this Mayo Clinic Line.

Teresa- I agree, I hope the conversations continue and we all can learn more about AO and not feel like we can difference. One issue that has affected me the last 6 months - is the attack on my immune system, which AO has a high rate of showing up with immune disorders that cause other health problems. I have had Pneumonia 4 times in the last 5 months, my Dr. believes is because of the immune system being so compromised, it also was the diagnoses of my low blood count for Iron, They sent me to the Cancer center for IV Infusions of Iron for two weeks in order to bring the blood count back up. One of the issues soldiers will tell other soldiers and chaplains -( is how alone they feel- most people who find out a soldier of any branch has AO disorder- they distance themselves- which I have found to be true with AO and more so with PTSD) many think PTSD is a sign meaning the person is dangerous - but if people would do the medical research- PTSD is where soldiers don't want to be around people, stay alone, avoid crowds, parties, Malls, and they are very passive. Yes, there may be a case somewhere among so many - but usually it's caused by other reasons that they have been experiencing -or a problem they have had for a while. The reason I researched it is because I have PTSD- and I loss my self worth, and I don't hang around more than one friend and my wife- who is also a Viet Nam Nurse and Vet. We are really to private- Just Church and a few friends- which are 90% Military, or Law Enforcement. JJames

It was discovered by his local doctor who got an MRI. Then we went to Mayo. No one has replied with this diagnosis.