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Dermatomyositis Flare: How long does it take for the meds to build up?

Posted by livinglife1 @livinglife1, Oct 27 12:40pm

Newly diagnosed in August 24….Seemed like I had a good week. All of a sudden yesterday hit with feels like a set back of muscle fatigue where I first had it in my arms. I haven’t felt fatigue or tingling there since my first flare/diagnosis. I’ve been on Methotrexate, Prednisone, Hydroxychloroquine and IVIG (3, 5day rounds) since August. Tapering prednisone but been on 25 for 2 weeks now so I dont feel like it’s a tapering issue. I don’t know. ….How long does it take for the meds to build up? Been on them since 8/12/24. Have another appt at Mayo in a week. Any and all thoughts would be appreciated. 😊

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Mentor
Becky, Volunteer Mentor | @becsbuddy | Nov 1 4:54pm
In reply to @bettyannh "I went through 4 different doctors and several different diagnoses, but after 10 years., I found..." + (show)
@bettyannh

I went through 4 different doctors and several different diagnoses, but after 10 years., I found one that knew what I had. The earlier doctors would always give me prednisone and I would clear up, but only temporarily. Since finding my current doctor. I have had long breaks. I know I will never get completely away from this, but it is a big relief knowing I have help waiting

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@bettyannh It’s so frustrating, isn’t it! I’ll bet it is equally frustrating for the doctor who is presented with all these new problems! How did you find this new doctor? Pure luck?
Your attitude is so positive! What do you do to care for yourself?
Another question; what is ADM?

REPLY
1 reply
bettyannh | @bettyannh | Nov 6 11:33am
In reply to @becsbuddy "@bettyannh It’s so frustrating, isn’t it! I’ll bet it is equally frustrating for the doctor who..." + (show)
@becsbuddy

@bettyannh It’s so frustrating, isn’t it! I’ll bet it is equally frustrating for the doctor who is presented with all these new problems! How did you find this new doctor? Pure luck?
Your attitude is so positive! What do you do to care for yourself?
Another question; what is ADM?

Jump to this post

ADM is amyopathic dermatomyositis. I heard my doctor's name in passing and had to get another doctor to refer me in.

REPLY
bettyannh | @bettyannh | Nov 7 10:14am

It takes 2 to 3 months for meds to build up and correct the problem. In my case this is true. Time! Patience. Both are important.

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