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Any suggestions on what time of day is best for taking Hydroxyurea?

Blood Cancers & Disorders | Last Active: 3 days ago | Replies (46)
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@suanne90

Yes, I am aware of all of that. Thank you though. My daughter has a very rare blood disorder and Hydroxyurea is the medication her hematologist is wanting to "try". So, I've been doing much research on the topic.

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Replies to "Yes, I am aware of all of that. Thank you though. My daughter has a very..."
janemc | @janemc | Nov 2 6:29am

As Lori says, HU is widely used for a range of blood disorders and cancers. It is easy to get and it's inexpensive.

While some people experience problems with HU, most of us take it without any complications. Some individuals on this forum have been taking HU for decades.

For me, HU has brought significant relief from the fatigue and headaches of my blood cancer, ET with the MPL driver.

Hearing we have a blood problem we've never even heard of before is terrifying. Our oncologists are usually too busy to chat about our concerns. And for our primary care physicians may know nothing about our blood disorders or cancers, because as you say, they are very rare.

But on this forum, you're among friends who know what you're going through. This is a great place to ask questions and learn how to move forward.

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Lori, Volunteer Mentor | @loribmt | Nov 2 8:44am

I’m happy you’ve joined us in Connect. @janemc wrote, you are among friends here so if there’s anything we can help you with just let us know.

There’s a diverse array of blood disorders represented in our support group. I may be able to connect you with other members. Would you mind sharing your daughter’s very rare blood disorder? How long ago was she diagnosied?

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