When you receive your genetic testing results, please share whether your mutated gene is found. The 123 genes tested on my DNA were all normal. It is believed that my mutation has just not been discovered thus far.

I certainly can't ace a treadmill test but I am the same regarding ordinary tasks. I get breathlessness out of the blue - usually when NOT exerting but I usually don't get it when I climb stairs or play pickleball or bicycle. Just received HOCM diagnosis for the first time in my life (though I may have had it for a long time). I have no other symptoms (yet?). Have my first REMS team appointment next week - any suggestions on questions to ask are welcome. Also, I have tried to find out about paying for Camzyos (my local cardiologist said that I will need to go on it - and referred me to a REMS team). Am I correct that no medicare plan covers it? It is open season but my supplemental plan cannot even tell me which of their plans will or will not cover it because it will require pre-authorization as everyone has discussed here. So I cannot make an informed decision about which supplemental plan to select during open season. Has anyone had significantly good coverage with Blue Cross Blue Shield or Aetna or other? Thank you.