1. < Autoimmune Diseases

Free Autoimmune Virtual Support Group

Posted by sinojosvacios @sinojosvacios, Oct 1 7:43am

Hi all,

I wanted to make folks aware of a virtual autoimmune support group that will be held this evening, Tues Oct 1st at 7:30pm Eastern Time (6:30pm Central, 5:30pm Mountain, 4:30pm Pacific).

Here is the link: https://www.meetup.com/autoimmune-depression-anxiety/events/303379553/

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

sinojosvacios | @sinojosvacios | Oct 2 7:43am

By the way, this group meets biweekly, same day and time. 🙂

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2 replies
leslieb24 | @leslieb24 | Oct 6 3:05am
In reply to @sinojosvacios "By the way, this group meets biweekly, same day and time. :)" + (show)
@sinojosvacios

By the way, this group meets biweekly, same day and time. 🙂

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I am extremely interested in joining this!

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ann68df | @ann68df | Oct 9 12:42pm

Glad to join. I have Sarcoidosis.

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donnado | @donnado | Nov 1 2:02pm

Good Afternoon,
I am new to the group, so I have much to learn from all of you. I have WM for two and a half years, non-Hodgkins lymphoma. It is treatable but not yet curable. I now have a spot on my big toe in consideration for melanoma. I have an appointment with a dermatologist on Monday, 11/04, so I know I will learn more. Skin cancers are one of the side effects of WM, from what I have read. I also have neuropathy in my feet. I have a challenged immune system but believe in medical science and love research. I have a doctorate in educational leadership. I will share what I can.

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1 reply
donnado | @donnado | Nov 1 2:03pm
In reply to @sinojosvacios "By the way, this group meets biweekly, same day and time. :)" + (show)
@sinojosvacios

By the way, this group meets biweekly, same day and time. 🙂

Jump to this post

Hi, when is the next virtual session, please?

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1 reply
sinojosvacios | @sinojosvacios | Nov 1 2:29pm
In reply to @donnado "Hi, when is the next virtual session, please?" + (show)
@donnado

Hi, when is the next virtual session, please?

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Hi, I'm not sure. You have to go to the above link and create a Meetup Account and then join the group.

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Mentor
Becky, Volunteer Mentor | @becsbuddy | Nov 1 4:32pm
In reply to @donnado "Good Afternoon, I am new to the group, so I have much to learn from all..." + (show)
@donnado

Good Afternoon,
I am new to the group, so I have much to learn from all of you. I have WM for two and a half years, non-Hodgkins lymphoma. It is treatable but not yet curable. I now have a spot on my big toe in consideration for melanoma. I have an appointment with a dermatologist on Monday, 11/04, so I know I will learn more. Skin cancers are one of the side effects of WM, from what I have read. I also have neuropathy in my feet. I have a challenged immune system but believe in medical science and love research. I have a doctorate in educational leadership. I will share what I can.

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@donnado Welcome to Mayo Clinic Connect? I’m so glad you found the group and that you want to join the virtual support group. You mentioned seeing a dermatologist tomorrow. Will you keep us informed? Can i ask what WM stands for?

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1 reply
setesa18 | @setesa18 | Nov 1 5:11pm

I have Lupus and Hoshimoto's disease, along with a bunch of types of arthritis and degenerative disc disease. I also have Chronic Leukopenia. I'm assuming that's from Lupus. I was wondering if there's an average amount of bone broth to drink, to help with my WBC?

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donnado | @donnado | Nov 2 7:05am
In reply to @becsbuddy "@donnado Welcome to Mayo Clinic Connect? I’m so glad you found the group and that you..." + (show)
@becsbuddy

@donnado Welcome to Mayo Clinic Connect? I’m so glad you found the group and that you want to join the virtual support group. You mentioned seeing a dermatologist tomorrow. Will you keep us informed? Can i ask what WM stands for?

Jump to this post

WM is Waldenström macroglobulinemia, a type of cancer affecting two types of B cells: lymphoplasmacytic cells and plasma cells. Both cell types are white blood cells. WM is characterized by high levels of a circulating antibody, immunoglobulin M, which is made and secreted by the cells involved in the disease.
Another name for it is Lymphoplasmacytic lymphoma.

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