Thoracic polyneuropathy

Posted by cats0cats2 @cats0cats2, Oct 23 11:37am

Anyone out there been diagnosed with Thoracic Polyneuropathy.

Interested in more discussions like this? Go to the Neuropathy Support Group.

Lisa Lucier, Moderator | @lisalucier | Nov 1 10:43am

In reply to @cats0cats2 "Anyone with Thoracic Polyneuropathy have a Carcinoid Lung Tumor and/or a Bone Island in their Lumbar..." + (show)

Hi, @cats0cats2 - I thought you might be interested in posting in a discussion about carcinoid lung tumors to see if anyone there has experience with a connection to thoracic polyneuropathy.

- Typical Carcinoid Tumor in Lungs
https://connect.mayoclinic.org/discussion/typical-carcinoid-tumor-in-lungs/
Wondering if you've been diagnosed with a carcinoid lung tumor and a bone island in your lumbar area? If so, what treatment will you or have you undergone for this?

cats0cats2 | @cats0cats2 | Nov 1 1:46pm

In reply to @lisalucier "Hi, @cats0cats2 - I thought you might be interested in posting in a discussion about carcinoid..." + (show)

http://www.pnw-carcinoid-net.org/
Meetings-Events

The next Zoom meeting is scheduled for November 2nd, 2024. Meeting will start at 10am. There will be a presentation by Dr. Harshad Kulkarni, Chief Medical Advisor at the BAMF Health center in Grand Rapids, MI. Dr Kulkarni is a nuclear medicine physician and has a long history of treating NET patients in Germany. If you are not a member, please contact Gary or Caryn (emails below).

For people new to the group send an email to Caryn Jamero at swanjamero@gmail.com or to garydmurfin@gmail.com and you will be added to our email list (Listsrv).

I reached out to them to see if I could get a Zoom invite to the presentation tomorrow about Carcinoid/NET. I gave them a brief description of my situation and asked them if they thought I might gain something from hearing that presentation. Will see! Thanks for the info.