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CIDP and trying to get on with life

Autoimmune Diseases | Last Active: Nov 3 5:29pm | Replies (10)
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@kgitti

I’m on Hizentra SCIG self infusions for the last year and a half after regular hospital IVIG infusions since 2021.
I’m able to get a months supply of Hizentra at once which makes travel easier. I take methylphenidate to aid with the fatigue and get PT for it and for the balance issues.
I’m 74 and still working full time. The CIDP is like working another full time job. It’s a lot to manage and overwhelming at times but life is short.

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Replies to "I’m on Hizentra SCIG self infusions for the last year and a half after regular hospital..."
yvonne111 | @yvonne111 | Oct 31 3:24pm

Hi kgitti,

While I am not new to CIDP, I don’t live in America and many of the drugs I hear about aren’t an option. SCIG has been talked about, but not available as yet.
I don’t take anything for fatigue or balance, didn’t know there was something that could help me with this. My family doctor is reluctant to prescribe anything even for the neuropathic pain, preferring to leave it to my neurologist. As I have an appointment soon, I will research some of the medication you have mentioned and discuss these. Thank you for your input, indeed life is too short.

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