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@chickytina

I am so sorry that you have had such a negative experience. Possibly you could reach out to friends or family members via face time or zoom. Although it is not the same as seeing someone in person, it is nice to see someone smiling on the other end and still it is safe for you and your husband. Your friends and family might be afraid to inadvertently get your husband sick and therefore staying away. I know for my sister soon after I had my surgery she was apprehensive to come near me due to that fear. I pray that things ease up for the two of you.

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Replies to "I am so sorry that you have had such a negative experience. Possibly you could reach..."

Hello chickytina, Thanks for your caring spirit. Our family live a 2 day drive away and I guess they prefer after 6 yrs of my spouse having his transplanted kidney to not call, write, email, text or snail mail us to show support. I have tried many times to embrace zoom stuff and I don't at all. I am a huge extrovert all my life; but have not been able to live even close to my normal self which has caused me to go into a depression over 4.5 yrs ago. First in life having a mental illness and I'm over 60 yrs old. We have a gazebo screened in for friends to come visit us and that has not brought people to come visit , even me and I'm healthy. What I am learning after May 2020 when I noticed a change in people is that 'empathetic distress' a psychological term I learned reading a psychological research article was revealing itself in super long time friends of mine. What that means basically is the pain that I am in emotionally they seem to 'take it on ' and cannot handle it. THey cannot just be present, be there for me/us. they ask how we are doing and I am very honest and after a year they drifted in the 'rearview mirror'. Even distant friends not local to my area started to react like this by not contacting us. I have always nurtured my family and friend relationships no matter how hard things get ,but I guess people cannot reciprocate when we need support. I wish them well and move on. Six years of waiting for my spouse to feel good for a day is still a wait. His doctors are more focused on the kidney function more than quality of life. That is what we have learned. Not everyone accepting a kidney transplant is receiving the complete news before going on a wait list is what we think. We know everyone is different, but tell us how some people over years of changing drugs and doses just don't feel good 'ever'. I could write a book at this point in time. Thanks for writing.