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DiscussionIt's just one of those days: Share your transplant recovery tips
Transplants | Last Active: Nov 10 6:26pm | Replies (22)Comment receiving replies
Replies to "I am so sorry that you have had such a negative experience. Possibly you could reach..."
Hello chickytina, Thanks for your caring spirit. Our family live a 2 day drive away and I guess they prefer after 6 yrs of my spouse having his transplanted kidney to not call, write, email, text or snail mail us to show support. I have tried many times to embrace zoom stuff and I don't at all. I am a huge extrovert all my life; but have not been able to live even close to my normal self which has caused me to go into a depression over 4.5 yrs ago. First in life having a mental illness and I'm over 60 yrs old. We have a gazebo screened in for friends to come visit us and that has not brought people to come visit , even me and I'm healthy. What I am learning after May 2020 when I noticed a change in people is that 'empathetic distress' a psychological term I learned reading a psychological research article was revealing itself in super long time friends of mine. What that means basically is the pain that I am in emotionally they seem to 'take it on ' and cannot handle it. THey cannot just be present, be there for me/us. they ask how we are doing and I am very honest and after a year they drifted in the 'rearview mirror'. Even distant friends not local to my area started to react like this by not contacting us. I have always nurtured my family and friend relationships no matter how hard things get ,but I guess people cannot reciprocate when we need support. I wish them well and move on. Six years of waiting for my spouse to feel good for a day is still a wait. His doctors are more focused on the kidney function more than quality of life. That is what we have learned. Not everyone accepting a kidney transplant is receiving the complete news before going on a wait list is what we think. We know everyone is different, but tell us how some people over years of changing drugs and doses just don't feel good 'ever'. I could write a book at this point in time. Thanks for writing.