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My Parkinson's life is so confusing - this is not easy.
Parkinson's Disease | Last Active: 6 hours ago | Replies (136)Comment receiving replies
Hello @21amy
I had not heard of this being used as a PD treatment before. According to the website, https://www.inbrija.com/, this is an inhaled treatment that helps during off times. It appears that it does not replace Sinemet (carbidopa/levodopa) but is used in addition to it when symptoms are a problem between does of Sinemet.
Is this your understanding as well? Did your neurologist prescribe this? Once you begin this medication I (and many of our members) would be interested in knowing if it is helpful.
Will you post again with any other information about the Inbrija inhaler?
Replies to "Hello @21amy I had not heard of this being used as a PD treatment before. According..."
@hopeful33250 My husband took his first dose of Inbrija today. He has 'fluctuating' off times and when he is off, he suffers from anxiety, nausea, increased tremors and mostly his body thermostat shuts down so he can be sweating on his head, face and groin and his hands and feet and torso can be ice cold. The first dose today he noticed a slight improvement in his body temperature and his hand tremor and his anxiety. We are hopeful this will help him more and more. He can take it up to 5 times per day as needed and he must still take his regular Sinemet as prescribed 4Xday. I hope this helps
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It was prescribed by my neurologist at Mayo Rochester. He is known worldwide for his treatment of Parkinson’s. I should be getting it soon. I will get it through a specialty pharmacy out of Minneapolis. It is for freezing and breakthrough symptoms. I am taking Rytary for my main Parkinson’s med and will use the inhaled medication only as needed. I will update after I have used.