← Return to CIDP and trying to get on with life

Discussion

CIDP and trying to get on with life

Autoimmune Diseases | Last Active: Nov 3 5:29pm | Replies (10)

Comment receiving replies
@colleenyoung

Welcome, @yvonne111. Good questions. I'm tagging fellow CIDP members like @mabelandlynne @cgrogers @lynn66618 @coachrandy @goldacharna @danawyn @harley22 to bring them into this discussion to share their coping strategies of living with CIDP (chronic inflammatory demyelinating polyneuropathy).

You might also wish to poke around in this related discussion:
- CIDP Support Group: https://connect.mayoclinic.org/discussion/cidp-support-group/

Yvonne, you mention specifically that you want to continue to travel. Have you taken any small trips to gauge your abilities and what changes you might have to consider from pre-CIDP travels?

Jump to this post


Replies to "Welcome, @yvonne111. Good questions. I'm tagging fellow CIDP members like @mabelandlynne @cgrogers @lynn66618 @coachrandy @goldacharna @danawyn..."

Last summer I did a family trip to Greece.
At times it was not handicapped accessible and my transport chair was hard to maneuver on cobblestone sidewalks and streets.
There was also issues in some museums my family went to, having steps was a negative for me,so I sat outside while the rest of them went in.
I was not able to go to the Parthenon either, because of the rocky terrain, but I had been there 20 years ago when I didn’t have any mobility issues.
The island of Santorini was a nightmare because of the narrow stone walkways and tons of steps that my husband had to push my chair on.
Also it was extremely crowded, and hard to get thru the crowds.
On the other hand,taking the ferry back to our cruise ship was very easy, and the staff had a ramp and pushed me onto the boat.
I did have a good time on the trip, but I often felt sad that I had this mobility issues, and it did put a damper on my trip unfortunately.

Hi Colleen,
I have taken a few small trips away, so that I can still control the pace etc. Thinking of going overseas, so thank you for tagging other people for their input.