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@loribmt

Welcome to Connect, @tinytwiggy. It certainly can be overwhelming with a new diagnosis like your husband’s with MDS. Life throws us curveballs when we least expect it! I’m sure you have tons of questions and concerns. However, you came to the right place. There are several members in the forum who have MDS and with treatment are doing well. I didn’t have MDS, but a more aggressive form of leukemia over 5 years ago and am now cancer free. We’re all here to offer you and your husband hope…we understand what you’re going through.

If you haven’t already, you might want to read through some of the conversations in the forum with other members.
Living with MDS
https://connect.mayoclinic.org/discussion/living-with-mds/
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Myelodysplastic Syndrome (MDS): how to increase red blood cells? https://connect.mayoclinic.org/discussion/mds/

You mentioned that he’ll be seen at Mayo at the end of the month. Does that mean October or November? Will this be in Rochester? My hematologist and bone marrow transplant team is located at Mayo Rochester and I can’t say enough wonderful things about them!
Do you have any questions about your upcoming trip?

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Replies to "Welcome to Connect, @tinytwiggy. It certainly can be overwhelming with a new diagnosis like your husband’s..."

Thank you so much for your response, and all this additional help. Yes, it's October 31st, he starts his first Mayo visit. We're staying through November 8th, for multiple appointments and tests. Then go back later in the month as well. Dave will be meeting with the research team and hematology but we do not know his doctor yet. Praying it all goes great! We do have friends that are allowing us to stay, so that's so nice. So happy you're now cancer free!! God bless! 🥰