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What are your experiences with lenalidomide (Revlimid) for MDS?

Blood Cancers & Disorders | Last Active: Oct 29 11:35am | Replies (7)
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@nbadry

Ginger, thanks for responding. Unfortunately last week a CT scan incidentally found that I have an unrelated retroperitoneal sarcoma. Seeing the oncological surgeon in a week. I have no idea how this impacts my eligibility for Revlimid (and I'm seriously doubt I'll still eligible for an SCT down the track). I'm reeling 😭

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Replies to "Ginger, thanks for responding. Unfortunately last week a CT scan incidentally found that I have an..."
Ginger, Volunteer Mentor | @gingerw | Oct 29 11:35am

@nbadry Wow, what a blow to your campaign for Revlimid. I can offer you a shoulder to lean on, and an outlet for venting. I wouldn't be too quick to write off the chance at Revlimid, or a stem cell transplant. You don't know what's in the future.

I hope you will let me know what the surgeon says next week, and what you hematologist has to say.
Ginger

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