1. < Polymyalgia Rheumatica (PMR)

Anyone have experience with Low Dose Naltrexone instead of prednisone?

Posted by vfaye @vfaye, Nov 19, 2019

I have been diagnosed with PMR and can’t take Prednisone.
LDN has been suggested - it has been used off label for autoimmune disorders. Has anyone heard of this?

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

wendy517 | @wendy517 | Oct 28 10:44am

My Mom has PMR, GCA, Raynauds and she is on a low dose of that drug and it's been fantastic for her. Not a single flare up and she's had some very stressful times with my Dad passing suddenly, she's selling her home & building another one and so much stress with all of that which can trigger a flare up and she's been good 🙏
Best of luck to you!

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1 reply
robinrae | @robinrae | Oct 28 1:29pm
In reply to @ddonnagirl1 "I am on prednisone and can’t get under 2 mg. I have now decided to see..." + (show)
@ddonnagirl1

I am on prednisone and can’t get under 2 mg. I have now decided to see a naturopath as well. It has been just about two weeks of taking many supplements for gut and inflammation. I had some back pain and she indicated it would be mostly gone in two weeks and it is! I am so hoping this will help me get off of the prednisone. She says 3 months, so for my bodies sake I’m going to give it a try! Good luck to all on this journey. BTW diagnosed with PMR 6-22! Pred was 60,40,20,15,12,10,9,8,7,6,5,4,3 now 2 mg! 2.5 years on prednisone.

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Sounds like you're in good hands with that naturopath...The one I chose had listed autoimmune as one of her specialties. I take LOTS of supplements under her care, but I am feeling so much better. Best wishes for your recovery!

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robinrae | @robinrae | Oct 29 1:01pm
In reply to @wendy517 "My Mom has PMR, GCA, Raynauds and she is on a low dose of that drug..." + (show)
@wendy517

My Mom has PMR, GCA, Raynauds and she is on a low dose of that drug and it's been fantastic for her. Not a single flare up and she's had some very stressful times with my Dad passing suddenly, she's selling her home & building another one and so much stress with all of that which can trigger a flare up and she's been good 🙏
Best of luck to you!

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So sorry about your Dad passing. Your mom's response to the LDN is so encouraging. Thank you for sharing!

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1 reply
wendy517 | @wendy517 | Oct 29 9:18pm
In reply to @robinrae "So sorry about your Dad passing. Your mom's response to the LDN is so encouraging. Thank..." + (show)
@robinrae

So sorry about your Dad passing. Your mom's response to the LDN is so encouraging. Thank you for sharing!

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I'm more than happy to get some more info from her, I don't know all the details.

Wishing you all the best on your health journey ❤️

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