Cancer risks of Tymlos

@yogagirl57 My endocrinologist told me the same about Tymlos. I am a cancer survivor and. had radiation therapy so he said no Tymlos for me. He recommended Evenity and I'm going for my 12th and last injections of Evenity tomorrow. I've had no side effects with Evenity. I meet with my endocrinologist again at the end of November after a bone density scan. We will then talk about next step to hopefully "lock in" any bone density gains I have made on Evenity.

@naturegirl15 That's fantastic no side effects!! So November is right around the corner so you'll soon have the results! Keep me posted if you can. I, too, am curious to see what the next step is to lock in any increased bone. Good luck with your Dexa results in November.

I have not taken tymlos. I have taken forteo, alendronate and Evenity and just had my first injection of prolia. And ,yes, for me it is a matter of buying time and which risks I am willing to take. I have decided that I would rather risk possible side effects of the available drugs rather than the further deterioration of my bones due to the unmedicated process of osteoporosis. I know that I will die of something and for me this decision answers the question - will this lead to a better quality of life.

As one who has had a horrific rebound effect from stopping Prolia and going back to Boniva, just be aware you basically can’t stop taking Prolia, ever. Make sure you know all the risks and are prepared for them if you do decide to stop. I am on Tymlos now and hoping to recover some of my rebound lost bone mass after 3 compression fractures in 4 months. I can elaborate if needed. Good luck with whatever you try! This osteoporosis is not for sissies!!

@jennirdh that's awful! Did the doctor warn you there may be a rebound effect? I started Tymlos yesterday. I wasn't told about any rebound effect with it, just that it's for either 18 months or two years, then you have to stop and can't go back on it again. If it builds back some bone density, but then it gets worse after, then it's just bought me a few years I guess. I wish I could go with something like Algae Cal, I felt a bit like I had the flu last night.

I will start tymlos on Monday and scared to death. I am 66 and very active. I started with osteopenia at age 46 with my right hip. Changed my food, eliminated all white bread etc and had no issues. Each bone density got worse and worse. Have no pain but scores are osteoporosis.

I will start tymlos on Monday and scared to death. I am 66 and very active. I started with osteopenia at age 46 with my right hip. Changed my food, eliminated all white bread etc and had no issues. Each bone density got worse and worse. Have no pain but scores are osteoporosis.

Same here as far as being scared to death. My doctor said insurance only pays for a dex scan every two years so I could be doing this for 18 months or two years for nothing but not know it until the next scan.

I would suggest checking with your insurance company. They might cover more frequently if you are undergoing treatment. The worst they can tell you is that they will pay only after 2 years.