Cancer risks of Tymlos

Posted by loh @loh, Oct 27 10:24am

I am 62 and have osteoporosis. The doc suggested Tymlos and between side effects and risks of cancer I’m petrified to start this process. It is a huge leap for me to take something like this, I barely take aspirin or Advil. For those who have taken it, was there a huge benefit? Did the benefits continue after stopping or did it just buy you a little time with bone density?

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samclembeau | @samclembeau | Oct 27 11:04am

Haven't heard cancer risk with tymlos.

loh | @loh | Oct 27 11:23am

In reply to @samclembeau "Haven't heard cancer risk with tymlos." + (show)

That’s the first thing listed as possible risks and apparently why you can only take it for a maximum of two years.

gently | @gently | Oct 27 11:33am

In reply to @loh "That’s the first thing listed as possible risks and apparently why you can only take it..." + (show)

The black box warning about cancer from Tymlos or Forteo use has been removed. There are still old posts, probably will be forever, on the internet.
Twenty years plus of research has disproven the cancer theory, though it remains true for the rats that aroused the suspicion.
Endocrinologist are now prescribing both medication extending beyond the two year cancer warning limit.
There can be side effects. But, you can always stop the medication as the drug leaves the body withing 24 hours. So, if you were one of the unlucky few, you'd only suffer a day.
Some people do have allergic reaction to Tymlos. Best luck. It is one of the best drugs.

loh | @loh | Oct 27 12:41pm

I was looking at the information that came with the medicine and the possibility of bone cancer was the first thing it said, so I'm not sure if that's outdated information.

windyshores | @windyshores | Oct 27 6:47pm

In reply to @loh "I was looking at the information that came with the medicine and the possibility of bone..." + (show)

@loh that is outdated. Unless you have metastasis already of a preexisting cancer. Please don't worry about cancer. I have had breast cancer and took Tymlos for two years and didn't worry at all about new cancer.

Many of us try Tymlos full dose and if hard to tolerate, back down to lower dose on the adjustable pen and then move up as we are able.

I had dramatic gains in 18 months, went from severe to borderline in spine. Hope you will try it!

loh | @loh | Oct 27 7:03pm

In reply to @windyshores "@loh that is outdated. Unless you have metastasis already of a preexisting cancer. Please don't worry..." + (show)

Thank you @windyshores! I’m supposed to start tomorrow and as you can probably tell, I’m stressing tonight!

windyshores | @windyshores | Oct 27 7:11pm

In reply to @loh "Thank you @windyshores! I’m supposed to start tomorrow and as you can probably tell, I’m stressing..." + (show)

@loh hope you can sleep and rest easy. Tymlos rescued me from a deep dark hole! Good luck! Keep us posted.

If you do have side effects many of them go away in the first week or two, and there is always the option of going down on the number of clicks on the pen for a bit.

gravity3 | @gravity3 | Oct 28 4:17am

I have not taken tymlos. I have taken forteo, alendronate and Evenity and just had my first injection of prolia. And ,yes, for me it is a matter of buying time and which risks I am willing to take. I have decided that I would rather risk possible side effects of the available drugs rather than the further deterioration of my bones due to the unmedicated process of osteoporosis. I know that I will die of something and for me this decision answers the question - will this lead to a better quality of life.

yogagirl57 | @yogagirl57 | Oct 28 8:18am

In reply to @samclembeau "Haven't heard cancer risk with tymlos." + (show)

I have heard through my endocrinologist that it has in studies of animals.

windyshores | @windyshores | Oct 28 8:23am

In reply to @yogagirl57 "I have heard through my endocrinologist that it has in studies of animals." + (show)

@yogagirl57 they gave rats huge doses. Osteosarcoma has not been an issue with human use. The black box warning has been lifted for both Forteo and Tymlos. Forteo can now be used for more than two years. (Tymlos is similar but the manufacturer needs to do the same studies for longer term use ...)