1. < Autoimmune Diseases

Fatigue , and exercise.

Posted by dkelban @dkelban, Aug 16 2:52pm

There is a pattern to my fatigue (I have mixed connective tissue disease).. It's most pronounced, by far, in the afternoon. Anyone else have a pattern to their fatigue, and how much does moderate exercise help?

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Mentor
Becky, Volunteer Mentor | @becsbuddy | Oct 25 3:51pm
In reply to @dkelban "Thanks for your input. Exercise can help but I have to force myself. I used to..." + (show)
@dkelban

Thanks for your input. Exercise can help but I have to force myself. I used to exercise a lot and often. Now... not so much. Lack of motivation. Do you find that mental effort is causes fatigue also? I now get quite fatigued after practicing guitar for 1 1/2 to 2 hours.

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@dkelban Yes, exercise is mind over matter. Some days I have to talk myself into walking, but I’m always glad I did. Today was a good day for exercise! I kept meeting friends and would walk with them. I ended up doing 2miles! A real record-breaker for this slow poke! I used to do 3 miles before Clippers!
Here is a support group that might get you started:
https://connect.mayoclinic.org/discussion/lets-go-walking-join-me-for-a-virtual-walking-support-group/
What do you think would motivate you? Special cookies when you get home? Or, how about that special movie on TV tonight. Watching is only allowed if you done your walk. If you can walk every day, regardless of the weather, it will vey soon become a habit!
What reward can you promise yourself?

REPLY
1 reply
heisenberg34 | @heisenberg34 | Oct 26 9:43am
In reply to @dkelban "Thanks for your input. Exercise can help but I have to force myself. I used to..." + (show)
@dkelban

Thanks for your input. Exercise can help but I have to force myself. I used to exercise a lot and often. Now... not so much. Lack of motivation. Do you find that mental effort is causes fatigue also? I now get quite fatigued after practicing guitar for 1 1/2 to 2 hours.

Jump to this post

If you aree able to exercise...GO FOR IT! I would love to be able to exercise. My chronic severe pain ramps up to terrible levels after just ten or fifteen minutes of exercising. So, do it while you can.

REPLY
1 reply
dkelban | @dkelban | Oct 26 3:40pm
In reply to @heisenberg34 "If you aree able to exercise...GO FOR IT! I would love to be able to exercise...." + (show)
@heisenberg34

If you aree able to exercise...GO FOR IT! I would love to be able to exercise. My chronic severe pain ramps up to terrible levels after just ten or fifteen minutes of exercising. So, do it while you can.

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Thanks for your reply. I'm sorry to hear about your suffering, and hope you get remission. I'm lucky compared to so many autoimmune sufferers. Best wishes.

REPLY
dkelban | @dkelban | Oct 26 4:02pm
In reply to @becsbuddy "@dkelban Yes, exercise is mind over matter. Some days I have to talk myself into walking,..." + (show)
@becsbuddy

@dkelban Yes, exercise is mind over matter. Some days I have to talk myself into walking, but I’m always glad I did. Today was a good day for exercise! I kept meeting friends and would walk with them. I ended up doing 2miles! A real record-breaker for this slow poke! I used to do 3 miles before Clippers!
Here is a support group that might get you started:
https://connect.mayoclinic.org/discussion/lets-go-walking-join-me-for-a-virtual-walking-support-group/
What do you think would motivate you? Special cookies when you get home? Or, how about that special movie on TV tonight. Watching is only allowed if you done your walk. If you can walk every day, regardless of the weather, it will vey soon become a habit!
What reward can you promise yourself?

Jump to this post

Thanks for your reply. Having company would indeed help. So far, though I have good friends, my outreach has been futile. Everyone does their own thing. There are meetup.Com walks.

REPLY
horseofcourse137 | @horseofcourse137 | Oct 27 1:19pm

My issue is I enjoy exercising but can feel drained later. I’ll even start yawning during exercise sometimes. I’ve complained about being tired for years.
Current blood work shows my B6 level is toxic 112.6 (2.1-21.7) is normal my B12 is also high at 1416 (normal 200-1100). I’ve seen a hematologist who said that there’s no problem 😌
Bottom line is I’m tired of being tired!!!

REPLY
2 replies
dkelban | @dkelban | Oct 27 8:04pm
In reply to @horseofcourse137 "My issue is I enjoy exercising but can feel drained later. I’ll even start yawning during..." + (show)
@horseofcourse137

My issue is I enjoy exercising but can feel drained later. I’ll even start yawning during exercise sometimes. I’ve complained about being tired for years.
Current blood work shows my B6 level is toxic 112.6 (2.1-21.7) is normal my B12 is also high at 1416 (normal 200-1100). I’ve seen a hematologist who said that there’s no problem 😌
Bottom line is I’m tired of being tired!!!

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Sorry to hear you're going through this? Autoimmune fatigue is so different from ordinary tiredness isn't it? It's like the car just has no gas. It's a real pain in the ass.

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Mentor
Becky, Volunteer Mentor | @becsbuddy | Oct 27 9:26pm
In reply to @horseofcourse137 "My issue is I enjoy exercising but can feel drained later. I’ll even start yawning during..." + (show)
@horseofcourse137

My issue is I enjoy exercising but can feel drained later. I’ll even start yawning during exercise sometimes. I’ve complained about being tired for years.
Current blood work shows my B6 level is toxic 112.6 (2.1-21.7) is normal my B12 is also high at 1416 (normal 200-1100). I’ve seen a hematologist who said that there’s no problem 😌
Bottom line is I’m tired of being tired!!!

Jump to this post

@horseofcourse137 Welcome to Mayo Clinic Connect! Your fatigue must be so awful to deal with! You say that your B6 and B12 levels are high but the doctor says they’re “ok”? You might make another appointment with the hematologist and ask specific questions about the 2 levels.
These articles on B6 and B12 don’t say anything about problems about high serum levels of the two vitamins. The article on B-12 does mention fatigue as a side effect.
https://www.mayoclinic.org/drugs-supplements-vitamin-b6/art-20363468
https://www.mayoclinic.org/drugs-supplements-vitamin-b12/art-20363663
Make a list of questions to ask your doctor. How do you think the doctor will respond to your questions?

REPLY
1 reply
horseofcourse137 | @horseofcourse137 | Oct 28 2:29am
In reply to @becsbuddy "@horseofcourse137 Welcome to Mayo Clinic Connect! Your fatigue must be so awful to deal with! You..." + (show)
@becsbuddy

@horseofcourse137 Welcome to Mayo Clinic Connect! Your fatigue must be so awful to deal with! You say that your B6 and B12 levels are high but the doctor says they’re “ok”? You might make another appointment with the hematologist and ask specific questions about the 2 levels.
These articles on B6 and B12 don’t say anything about problems about high serum levels of the two vitamins. The article on B-12 does mention fatigue as a side effect.
https://www.mayoclinic.org/drugs-supplements-vitamin-b6/art-20363468
https://www.mayoclinic.org/drugs-supplements-vitamin-b12/art-20363663
Make a list of questions to ask your doctor. How do you think the doctor will respond to your questions?

Jump to this post

Thanks for the links. My primary dr has told me to quit any taking any vitamin B supplements. Only B vitamins I found I was taking was in Heliocare which my dermatologist recommended since I’m fair skinned and have had skin cancers.
The B6 link says something about painful skin lesions. I’m 8 weeks post being diagnosed with shingles still having Postherpetic neuralgia pain, getting better but still there.
Another thing my red blood cells are larger than normal and has been for years, which I’ve read can be Macrocytic anemia. All rather confusing but I imagine all play a part in my issue. I think I need to see my hematologist again and ask some questions. Thanks again!

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