← Return to Is A Repeat Bone Marrow Biopsy Called for

Discussion

Is A Repeat Bone Marrow Biopsy Called for

Blood Cancers & Disorders | Last Active: Oct 30 4:25am | Replies (15)
Comment receiving replies
@richardab

Hi Lori, no treatments yet, doctors not convinced of the need yet as other analyses, while declining, haven't put me in the category of active Multiple Myeloma. Really bad Chronic Fatigue but the heme/onc I fired told me it wasn't being caused by cancer and he wasn't going to address it. He also blew off my reporting dimming eyesight with black spots and flashes of lights because "it wasn't caused by cancer". Needless to say, an opthamologist told me to come in immediately and found the central vein in my left eye is completely occluded so I'm geetting injections to hopefully reduce the swelling. Perhaps the sight will come back, maybe not. However, that doctor blowing off my concern violated his oath of office.

Jump to this post

Replies to "Hi Lori, no treatments yet, doctors not convinced of the need yet as other analyses, while..."
Lori, Volunteer Mentor | @loribmt | Oct 29 9:03am

Oh gosh, Richard, I’m so glad you kept pushing for answers with the changes in your vision and saw an ophthalmologist! Hopefully your sight will return fully with these treatments. That’s frighting to have a disruption in your eyesight and pretty easy to feel it’s related to your other health issues.

I agree, that was really dismissive of your oncologist in regard to your vision. A little more empathy and concern would have been comforting. Totally understandable to want to switch doctors after that. I would have made a change too!
As far as starting treatment it’s not uncommon to delay until absolutely necessary. I found a good article on MM from MD Anderson where it states, “Knowing when to treat multiple myeloma is a delicate balance. If you treat it too soon, the disease can become resistant to future treatments…”. Here’s the full article for you:
Multiple myeloma: When to treat and when to wait https://www.mdanderson.org/cancerwise/multiple-myeloma--when-to-undergo-treatment-and-when-to-wait.h00-159386679.html

You mentioned PET/CT scans…did you also have those?

VIEW AND REPLY