Hi Lisa,
My husband Dave has struggled with chronic anemia and fatigue for 2 1/2 years. He was diagnosed with MDS MPN RS-T, SF3 B1... confirmed in April with a bone marrow biopsy. He was also found to have the JAK 2 and one other. So much to learn and understand about his blood cancer, it is overwhelming. He has a great hematologist, who has been following his disease since Feb. Hoping to get some help when we meet with the research team and Hematologists at the Mayo the end of the month.
Now this month, we found out he has PAD, with recent angioplasty to improve blood flow to his right leg. Has to go back for the other leg soon. Hemoglobin was down to 9 at his last blood test on 10/24. Highest it has been in the last year was 10.2. Platelets and blood volumes remain high. We will keep reading and following some of these feeds to see how others are dealing with their issues. Good luck to you on your care. Hope you can feel better soon. I know it sucks to see Dave so exhausted, I am sure you are "tired of being tired", too. He is trying to work yet at age 63 and it has become too much. He is an auto technician with a very physically and mentally demanding job, with his blood cancer, it makes it all the harder. I am trying to fight for him to get disability. Denied so far. We are taking life one day at a time! Stay strong, we have no choice but to fight and try to remain positive!! 🙂 God bless!