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Newly diagnosed with AML (FTL3 TKD)

Blood Cancers & Disorders | Last Active: Oct 29 10:04am | Replies (16)
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@sonieaml

That is great news!

I too received results from my 3rd BMB and the results show me in REMISSION. No FLT-3 or NBPM-1 (NPMB-1) mutations were found. They do not know why my numbers are so slow to recover. Latest blood (Thursday) draw had my neutrophils at 0.1 and my platelets continue to drop week over week. Last treatment ended on Oct 15.
I will continue with weekly blood draws until my neutrophils get to 1.0 or above. At that time my chemo treatment will be 2 days Dacogen and 5 days Ventaclax. Formerly 3/7.
My question: why, if I am in remission and my numbers get back up to “normal” do I continue to be treated with chemotherapy? Help/explanation/insight appreciated. BTW I am 76 yo female and was diagnosed with AML on 3/30/24.

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Replies to "That is great news! I too received results from my 3rd BMB and the results show..."
Lori, Volunteer Mentor | @loribmt | Oct 29 10:04am

Hi @sonieaml, wow, that’s good news for you with your BMBX showing No FLT-3 or NBPM-1 mutations were found. That’s a huge relief being in remission!
The FLT3 mutation, in particular, is the tricky one and cells can remain ‘dormant’ or hiding out, essentially evading chemo. So your oncologist will be on the lookout for any trace of it returning for a certain period of time. They’ll continue to monitor you and make the decision on whether there is maintenance chemo or not. But reaching remission through your treatments is really encouraging. ☺️

Now you just need to get those slow poke blood numbers back up! You might see those numbers return faster now that your treatment is being reduced. Are you feeling ok? How’s your energy level?

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