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@leetaanderson

Hi, Robin. I had an onset of PMR last December and like you was very concerned about the long term effects of prednisone. I managed the PMR with twice daily Aleve until very recently. I had a small spike in my CRP and symptoms. My rheumatologist was concerned about having to continue the Aleve indeterminately so I agreed to a low-dose, relatively short term course of prednisone. I started on 5 mg daily about three weeks ago and I’m tapering every two weeks planning to be off by December. If the pain persists past that, I’m planning on managing with Aleve again. So many here on the forum have had such struggles with prednisone that I remain wary and will try to avoid getting into that situation. I’ve also started some PT for my shoulders as I was starting to lose range of motion due to pain and guarding.

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Replies to "Hi, Robin. I had an onset of PMR last December and like you was very concerned..."

Leeta, I am impressed that you could manage so long on the advil alone. I believe that my original huge flare was caused by taking NSAIDS for an extended period for a neck injury. They made my stomach so upset...and anytime I get an autoimmune flare of any type, the first step to recovery is to heal the gut!
I see a rheumatologist in January...soonest I could get in. I've been wondering if it is possible to try a very low dose as you are doing! Thank you for replying and best wishes for your recovery.