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Sed Rate still elevated, but pain much improved
Polymyalgia Rheumatica (PMR) | Last Active: Oct 27, 2024 | Replies (18)Comment receiving replies
Exactly, rule of thumb number one : treat the painful PMR symptoms regardless of which way inflammation markers are going . Symptoms and inflammation can, but don’t always, respond in tandem. Sounds maybe like your rhumo doesn’t entirely trust patients symptom reporting, puts more emphasis on blood results?
All the best to you for your health.
Maye
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"Sounds maybe like your rhumo doesn’t entirely trust patients symptom reporting, puts more emphasis on blood results?"
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Maybe for the first year or so but later on my inflammation markers were rarely checked. I think she was just surprised that my inflammation markers were still elevated on 25 mg of prednisone. Supposedly PMR responds to "low dose" prednisone.
Initially, I was told to find a "stable dose" of prednisone that controlled my symptoms. My rheumatologist wasn't overly concerned about what the dose was but 35 mg was a "moderately high" dose and not really a low dose. We eventually settled on 40 mg as my starting dose.
When I was still on 10 mg of prednisone 10 years after being diagnosed with PMR, I asked if my diagnosis was correct. My theumatologist said PMR was my "primary diagnosis" but there were other things going on in addition to PMR.