1. < Autoimmune Diseases

Has anyone been diagnosed with GFAP

Posted by gardrums123 @gardrums123, May 26, 2023

My husband has been diagnosed with a rare autoimmune disease called autoimmune glial fibrillary acidic protein astrocytopathy.
Has anyone been diagnosed with this. Looking to know what we may have ahead of us.

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Mentor
Becky, Volunteer Mentor | @becsbuddy | Oct 26 3:57pm
In reply to @pfbeagan "Thanks for the reply and advise. I've been consistant with 8 - 10k steps a day..." + (show)
@pfbeagan

Thanks for the reply and advise. I've been consistant with 8 - 10k steps a day and bike also. When I walk it feels like my hips and knees are going in 4 different directions, I use a walking stick. I'm more comfortable biking. Been more active with all the household and yard chores. Also worried about my personality. I don't know if it is the wear and tear of being sick for so long or another Gfap thing. Not the same person I was before. See Dr. Carpenter soon, Fairview, Mpls. Frustrated and worried, will talk with him.

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Good to hear that you’re doing well @pfbeagan !

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