← Return to Anyone have multiple meningioma brain tumors?

Discussion

Anyone have multiple meningioma brain tumors?

Brain Tumor | Last Active: May 29, 2023 | Replies (148)

Comment receiving replies
@barbarabx

Six months ago I was told I have two benign meningiomas near my eyes. Vision in one eye is already almost gone (over a period of about six years). I was advised to have surgery to remove the tumors. I'm very worried that I may come out worse than when I went in. I don't know what to do.

Jump to this post


Replies to "Six months ago I was told I have two benign meningiomas near my eyes. Vision in..."

Thank you so much for this information. I am looking for any study. Best of luck to you. Ellen that can keep my tumors away. Surgery is not the answer. I have had two surgeries

Good Evening! Thanks for all the useful information. How did your MRI go the end of June? Did your tumors shrink at all. My sister has an appointment tomorrow morning with Dr O'Neill at Mayo. She flew there tonight from Atlanta. She has seen 2 neurosurgeons here. One recommended Cyber Knife, the other Gamma Knife. She had a 5cm meningioma surgically removed in 2001. Her most recent MRI shows 3 new tumors. One near optic nerve on left, other 2 on right. She is very worried about long term affects of Radiation but really does not want to go thru surgery again.
Hope you had good results!!
Thank You,
Nancy

We'll be thinking of you and your sister tomorrow, Nancy. Best of luck to her. Please keep us posted on what she finds out.

I am so happy she is there at Mayo. I know firsthand how wonderful Dr. O'Neil is since he has walked me through 10++ years of living with my left frontal meningiomas. I indeed trust him with my life and follow everything he tells me. It is SO refreshing not to have to second guess all those second rate Docs that just scare a person into reacting and want to immediately set you up for surgery!! Best of luck to your sister @nancye3 . She is in awesome hands!!!

Restorevision.com post tumor optic nerve treatment

Hi barbara. I just posted something for you to google. What ever your decision is maybe they can help restore some of your vision loss