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Anyone have experience with Low Dose Naltrexone instead of prednisone?
Polymyalgia Rheumatica (PMR) | Last Active: Oct 29 9:18pm | Replies (84)Comment receiving replies
I am newly diagnosed with PMR, September 2024. My father had it for several years until he died and was never able to wean off prednisone. I don't tolerate it well and am trying my hardest to manage the disease without resorting to it. I've been working with a naturopathic doctor and am taking LDN along with supplements meant to heal and strengthen gut barrier, and reduce inflammation. I am getting better slowly. Time will tell if this will work! Anyone else managing this disease without taking prednisone?
Replies to "I am newly diagnosed with PMR, September 2024. My father had it for several years until..."
I am on prednisone and can’t get under 2 mg. I have now decided to see a naturopath as well. It has been just about two weeks of taking many supplements for gut and inflammation. I had some back pain and she indicated it would be mostly gone in two weeks and it is! I am so hoping this will help me get off of the prednisone. She says 3 months, so for my bodies sake I’m going to give it a try! Good luck to all on this journey. BTW diagnosed with PMR 6-22! Pred was 60,40,20,15,12,10,9,8,7,6,5,4,3 now 2 mg! 2.5 years on prednisone.
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Hi, Robin. I had an onset of PMR last December and like you was very concerned about the long term effects of prednisone. I managed the PMR with twice daily Aleve until very recently. I had a small spike in my CRP and symptoms. My rheumatologist was concerned about having to continue the Aleve indeterminately so I agreed to a low-dose, relatively short term course of prednisone. I started on 5 mg daily about three weeks ago and I’m tapering every two weeks planning to be off by December. If the pain persists past that, I’m planning on managing with Aleve again. So many here on the forum have had such struggles with prednisone that I remain wary and will try to avoid getting into that situation. I’ve also started some PT for my shoulders as I was starting to lose range of motion due to pain and guarding.