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Newly diagnosed with AML (FTL3 TKD)
Blood Cancers & Disorders | Last Active: 34 minutes ago | Replies (56)Comment receiving replies
Just got my bmb results after the 4th cycle and the MRD shows .2%. I guess since I have a good mutation inversion 16 and the cancer hasn’t increased so a transplant isn’t required for now. I’m ecstatic that the cancer hasn’t increased and will continue with bmb every 3 months. Thanks for all of support and talking me through this tough time ♥️♥️
Replies to "Just got my bmb results after the 4th cycle and the MRD shows .2%. I guess..."
Excellent news, @jamielynn777 and what a relief for you! I hope your energy is starting to rebound and that you can get on with life now. I think Aries ready for you to ride like the wind again. ☺️
Just came across this post, which makes me feel a bit more optimistic before I see my oncologist tomorrow. Completed fourth cycle of consolidation chemo a few weeks ago, and numbers are almost back to normal. Feeling absolutely great. BMB showed no signs of AML from morphological inspection, but MRD was .28%--not too far off from your value. I'm favorable risk and hopeful no BMT needed for now. Will ask for BMB every three months.
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That is great news!
I too received results from my 3rd BMB and the results show me in REMISSION. No FLT-3 or NBPM-1 (NPMB-1) mutations were found. They do not know why my numbers are so slow to recover. Latest blood (Thursday) draw had my neutrophils at 0.1 and my platelets continue to drop week over week. Last treatment ended on Oct 15.
I will continue with weekly blood draws until my neutrophils get to 1.0 or above. At that time my chemo treatment will be 2 days Dacogen and 5 days Ventaclax. Formerly 3/7.
My question: why, if I am in remission and my numbers get back up to “normal” do I continue to be treated with chemotherapy? Help/explanation/insight appreciated. BTW I am 76 yo female and was diagnosed with AML on 3/30/24.