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Newly diagnosed with AML (FTL3 TKD)

Blood Cancers & Disorders | Last Active: Oct 29 10:04am | Replies (16)

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@jamielynn777

Just got my bmb results after the 4th cycle and the MRD shows .2%. I guess since I have a good mutation inversion 16 and the cancer hasn’t increased so a transplant isn’t required for now. I’m ecstatic that the cancer hasn’t increased and will continue with bmb every 3 months. Thanks for all of support and talking me through this tough time ♥️♥️

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Replies to "Just got my bmb results after the 4th cycle and the MRD shows .2%. I guess..."

That is great news!

I too received results from my 3rd BMB and the results show me in REMISSION. No FLT-3 or NBPM-1 (NPMB-1) mutations were found. They do not know why my numbers are so slow to recover. Latest blood (Thursday) draw had my neutrophils at 0.1 and my platelets continue to drop week over week. Last treatment ended on Oct 15.
I will continue with weekly blood draws until my neutrophils get to 1.0 or above. At that time my chemo treatment will be 2 days Dacogen and 5 days Ventaclax. Formerly 3/7.
My question: why, if I am in remission and my numbers get back up to “normal” do I continue to be treated with chemotherapy? Help/explanation/insight appreciated. BTW I am 76 yo female and was diagnosed with AML on 3/30/24.

Excellent news, @jamielynn777 and what a relief for you! I hope your energy is starting to rebound and that you can get on with life now. I think Aries ready for you to ride like the wind again. ☺️