Reclast side effects

Posted by dingus @dingus, Aug 15 2:24pm

Does anyone have a solution to combat Reclast side effects. I had the infusion a year and a half ago and the side effects started shortly after I had the infusion. I still have weak legs, swelling in feet, pain in bones, dizziness (serious dizziness), cold sweats, tired all the time and nervous twitching in bones. Any suggestions?

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@njx58

@awfultruth I had a procedure called aquablation - have you been given that option?

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@njx58, no I don't believe we discussed that one. I looked it up just now. Seems like it's less likely to mess up sexual functioning but that once again for a small percentage of guys it does.
Have you had a good experience with it? No chronic pain, helped with urination, preserved sexual functioning - any of the things that can go wrong in these prostate procedures and surgeries? Do you have any specific suggestion on where to read about it other than just a general search on it? Thanks for responding on this. I've been focused on osteoporosis for several years now but I need to start thinking of this one again. The urologist I saw said I'm a good candidate for Urolift but that the window of opportunity closes as the prostate gets larger.

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There is some discussion of aquablation on this forum somewhere. If you go to aquablation.com, there is more info, along with a search that will tell you which hospitals near you do it.

My experience has been great. Other than the Flomax known effects, the procedure itself was great for me. I have no side effects from it at all. Life is normal.

Urolift is not something I'd ever do. Putting in implants sounds like a problem waiting to happen. If I were you, I would definitely go get another opinion from someone who performs aquablation and similar procedures.

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@awfultruth

@dannyandebbie That is exactly the kind of bad result that I was afraid of when I decided against Urolift. Sorry that happened to you. As best I could tell having pain and needing the Urolift removed happens only to a small number of men but if you are one of them - just like with the osteoporosis meds if you are one of them with long term side effects, it's the s..x.

Your comment here is more detail than I was able to find when I was looking into this several years ago. I'm still trying to figure out what to do, so thanks for sharing your experience.
Were you told that to remove the clips that they would have to remove part or all of the prostate? Since the Urolift procedure has failed and now is removed have you decided on anything in terms of helping with urination?
Best of luck to you on this and on dealing with osteoporosis.

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Yes, I was told, in order to retrieve the clips from the Urolift they would have to remove some of the prostate. That would remove the clips, perhaps assist in urination and No guarantee that the burning I’m currently experiencing will ever go away.
Honestly, it is not the right choice but I do limit my fluid intake to assist in not always feeling the burning sensation as severe. As the symptoms for the need to urinate increase, the burning sensation increases alerting me for the need to relieve myself. I assume there is a concern of dehydration but I’ve managed for the past 14 years functioning as I am.
We all use to be a patient to our physician; as years have passed and our physician retired and the new generation and corporate management has replaced us as a number instead of a patient! Sad!

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@awfultruth

@dannyandebbie That is exactly the kind of bad result that I was afraid of when I decided against Urolift. Sorry that happened to you. As best I could tell having pain and needing the Urolift removed happens only to a small number of men but if you are one of them - just like with the osteoporosis meds if you are one of them with long term side effects, it's the s..x.

Your comment here is more detail than I was able to find when I was looking into this several years ago. I'm still trying to figure out what to do, so thanks for sharing your experience.
Were you told that to remove the clips that they would have to remove part or all of the prostate? Since the Urolift procedure has failed and now is removed have you decided on anything in terms of helping with urination?
Best of luck to you on this and on dealing with osteoporosis.

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I failed to also mention that as I’m sure you already know, any cutting on the prostate will also effect any future involvement on an intimate level!

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@lkhender

@normajean77 I totally concur with your opinion!

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Hi, Ikhender, I got your message. It came through my regular e-mail. Not sure why. But good to hear from you.
You sent out an article from "Cureus" around September 16 of this year. The article is dated July 7, 2023. It's about an 82 year old woman who had major side effects from a zoledronic acid infusion. If you still have that article could you send it out to us again? Someone found it with a google search, but I couldn't print it out. I'm especially interested in the comment that the patient had shoulder pain. I have shoulder pain (still do) and so did someone else in our group. Seems like an unusual place to have bone pain without having had injury to the shoulder. I've had hip surgeries and a knee surgery, but no shoulder surgery. Thanks, Ikhender.

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@dingus

Hi, Ikhender, I got your message. It came through my regular e-mail. Not sure why. But good to hear from you.
You sent out an article from "Cureus" around September 16 of this year. The article is dated July 7, 2023. It's about an 82 year old woman who had major side effects from a zoledronic acid infusion. If you still have that article could you send it out to us again? Someone found it with a google search, but I couldn't print it out. I'm especially interested in the comment that the patient had shoulder pain. I have shoulder pain (still do) and so did someone else in our group. Seems like an unusual place to have bone pain without having had injury to the shoulder. I've had hip surgeries and a knee surgery, but no shoulder surgery. Thanks, Ikhender.

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https://www.cureus.com/articles/165206#!/. Is this the article you're referring to? I read and copy so many articles that I get confused and my memory isn't what it used to be.

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@lkhender

https://www.cureus.com/articles/165206#!/. Is this the article you're referring to? I read and copy so many articles that I get confused and my memory isn't what it used to be.

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Yes, that's the one. Thanks so much. Keep in touch.

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@dingus

Hi, Ikhender, I got your message. It came through my regular e-mail. Not sure why. But good to hear from you.
You sent out an article from "Cureus" around September 16 of this year. The article is dated July 7, 2023. It's about an 82 year old woman who had major side effects from a zoledronic acid infusion. If you still have that article could you send it out to us again? Someone found it with a google search, but I couldn't print it out. I'm especially interested in the comment that the patient had shoulder pain. I have shoulder pain (still do) and so did someone else in our group. Seems like an unusual place to have bone pain without having had injury to the shoulder. I've had hip surgeries and a knee surgery, but no shoulder surgery. Thanks, Ikhender.

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I believe I know this Cureus article as well - the woman had severe hand and foot pain (like me) and ended up having to use a walker.

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Yes that's the article. And she didn't need the walker until she had had the Reclast infusion. The day after my infusion I had bad shoulder pain. I had never had shoulder pain before. The other pains in my feet, toes and elsewhere gradually came through in the months that followed. And the weakness, dizziness, tiredness...they continue.

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@dingus

Yes that's the article. And she didn't need the walker until she had had the Reclast infusion. The day after my infusion I had bad shoulder pain. I had never had shoulder pain before. The other pains in my feet, toes and elsewhere gradually came through in the months that followed. And the weakness, dizziness, tiredness...they continue.

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Good morning, just read your article about Reclast infusion. Back in July I was experiencing a lot of pain in my lower back which made me favor my right leg, putting a lot more weight on my left leg. Well, around the 22nd my endocrinologist recommended I have the Reclast infusion and so I had it done that day. The following day both shoulders were extremely sore and my left foot and I could not lift my right arm without help from my left arm. I continued to think it was from the back pain until I was filling out a questionnaire for my physical therapist. As I listed the Reclast infusion, I looked it up and lone and behold! It has been almost three months and the exercise my physical therapist has recommended seems to help but any physical use increases the pain. I have never had any shoulder issues until now. Some time ago I had a Urolift implanted and had what they could remove without cutting into the prostate removed; leaving me with this constant burning sensation, worse after urination. Well the burning did decrease until this infusion, it’s back! Everybody’s body is different, I pray the pain goes away and I’ll not have another infusion! Other symptoms, fatigue, loss of appetite and loss of sleep. The pain seems to get worse after I go to bed; waking 5-6 times throughout the night. Just thought I would share!

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