Needing to find something to help

Hello, this is my first post and I have been seeking help for some time.

I am dealing with some form of unknown autoimmune issue. The best that I can tell is that when I am exposed to what I call "antagonizing allergens" my body reacts by attacking itself. The problem is that these allergens are everywhere I have tried to live. They are composed of molds, pollens, danders, grasses, etc. I have been to the rheumatologists and immunologists and have tried the drugs they offered with little relief. The rheumatologists by far have not had any interest in performing any tests, I am currently waiting for my first appointment at the University Of Michigan Medicine rheumatology dept and that is many months away. The best advice I have gotten so far has been from my first immunologist which has been to do my best to avoid the allergens that inflame the condition, this has worked wonderfully when I am able to find places where I can do that. So far this has meant staying near the ocean where the air is fresh after coming for miles and miles over the water. This has worked so well that we now live on a sailboat along the east coast of the US, not a glamorous life as we have to constantly be on the move to stay within the weather envelope that allows us to keep all the windows open and there are times that we just simply cannot afford to do much aside from sit there and rock around on anchor as power boats wake us. This is causing a lot of problems with access to medicine, schooling for the five year old, and accommodating the dogs. This disease has taken our home, business, and my means of making income and having to travel like this is compounding the problems. Since we live in no one state we cannot get access to any resources to help with anything, going back to our home state is a death sentence for me. When I am experiencing flares my entire body seems to be under attack. I have sever arthritis, loss of hearing and vestibular issues from my estation tubes swelling shut, GI issues, cognitive and memory problems so sever I can't remember anything from day to day some times, respiratory issues, and more. These onset between two weeks and several months. I am at the end of my rope in trying to deal with this and the complete lack of support and empathy from agencies people is astounding. Just because I am able to walk sometimes, and because we are living on a boat seems to cause people to think that we're off living a life of luxury and ease while refusing to work. I just don't know where to turn or how to get access to any resources at this time and the desperation gets worse as we start to run out of food. If you know of anything to help please let me know.